Wednesday, October 29, 2008

Wed. Oct 29th

From Teresa... Tami says "I must be getting better because all my therapists are increasing the intensity of my workouts. Even the speech lady has me doing 3 digit math problems!" On Mon. she had to go up and down a flight of stairs without her cane. It scared her to death to come down, but she did it! She also walked the whole parameter of the rehab floor. (It's about 400 feet.)

We set up an eye exam at the Cosco right behind the hospital for Tues. afternoon. We went in the wheelchair and walked over to it. She got a new prescription for glasses and soft contacts. The adventure wore her out, but she can see and read better now.

Today in occupational therapy we pinpointed some "tone" in the left arm and shoulder area. It was very painful to stretch out. So she will be focusing on working on it during "down time" to try to avoid permanent damage. Grandma Ann is visiting now and will remind her to work with it.

Aunt Rosemary was up last night and gave her another hip massage.That felt great as always. Riley and Patty stopped by during her lunch break. They were amazed at how much better she looks compared to 4 weeks ago, (before the last surgery.)

Right now it looks like she will be going home to St. George on Nov. 10th. Yeah!!! Until then she is trying to get the most out of all her therapies. She will have out-patient rehab down there. More later...Teresa.

Sunday, October 26, 2008

Sun. Oct. 26th

From Teresa... Earlier in the week an ultra sound was done on Tami's legs and the blood clots were gone. So the Doctors wanted to remove the filter planted below her heart. It went in from the groin area and up a vein. It gets removed by going into the neck area and pulling it out through there. So about 11:30 on Thurs. a new IV line was needed. It took two different nurses and 4 tries to finally get one in! Yuck! Then Tami wasn't allowed to eat or drink anything until after the proceedure. So we waited, and waited, and waited, and waited.... AT 3:00 p.m. They called and said it would be two more hours because of all the emergency cases that kept comming in. At 5:00 p.m. my baby was really hungry and I've been trying to put weight back on her! This was not helping my cause! I kicked into "Mama Bear" mode. I told them either get her in or" Feed " her and do it tommorrow. They came back and said they were still three hours away and she could eat and go for it again tommorrow. She chose to EAT! It was the best pasta she had had all week! (Also she had been schedualed for an outing to Rumbis Island Grill for lunch that day followed by Stone Cold Creamery for dessert. It had been reschedualed.) So she was supposed to be the first patient at 7:30 a.m. on Friday. We were up and showered and dressed by 7:30. I checked with the nurses desk to see where we were on the plan for the day. They asked how Tami's clotting times were. I said nobody had been in to take any blood samples since last Sat. and she had the blood thinner shot the night before at 9:00 p.m.! So a blood sample was ordered stat. An hour later it came back o.k. I was still in "Mama Bear" mode so I warned the nurses I would be checking on things every hour on the hour. It was 12:00 noon when she was finally taken down to get it done. It was 1:30 p.m. when she was finished. All went well, although the doctor said her veins were dehydrated and he had a little difficulty with them.

Logan had arrived while she was getting it taken out. As soon as she was back in her room she was fed. The harp lady showed up and played for her while she ate.

Later, Albert and her girls arrived. Ella still doesn't like the whole hospital thing and the way her mom looks. But Lilli is just a doll with her mom. Feeding her, handing her things, loving her, and comforting her. So on Sat. Tami got to go on her outing for lunch. Ella was napping when we left so they joined us in time for the ice cream. Last night Lilli stayed the night with her mom and I. She was great and Tami loved it! They head back to St. George this afternoon. Anyway... More later.. Teresa.

Sun. Oct.26

From Teresa...

Wednesday, October 22, 2008

"NEMO FIN" WORKS! WED. OCT.22

From Teresa... During the last few physical therapies when Tami lies on her back with her legs over a bolster, and lifts her left leg, the bicep muscle in her left arm would flex. Yesterday during occupational therapy she acctually got some response out of her left arm! YEAH!!! It took everything she had to repeat it again and again. (about 6 times) Finally!!!! I'm hoping now that it's awakened, things will progress faster. I kept telling her she could be the best one handed massage therapist in St. George, but I really hoped that wouldn't need to be the case. She really misses her job and clients and is looking foreward to getting back to them all.

On Opra yesterday the Dr. that wrote the book "My Stroke of Insight" was interviewed along with Dr. Oz. Tami and I watched it together. It was so enlightening! She enjoyed seeing that she wasn't alone in the things she is dealing with and comparing the symtoms she has and the ones she was blessed not to have. (Tami has all her speech capabilities, THANK GOD!) Anyway I'm glad her dad in Florida called and gave me the heads up that it was on, and because of the time difference we were able to watch it. More Later..Teresa

Tuesday, October 21, 2008

Grandma Ann reporting. . . .

When I got back to Salt Lake last Thursday, I hadn’t seen Tami for over two weeks. . they moved her back to ICU the day I had to leave for St. George and she had the 3rd surgery the next day. I was so SAD and FEARFUL! It is only three weeks today since that surgery!

I am STUNNED by her progress. She is working so hard . . . it is difficult to put into words the magnitude of the ‘EFFORT’ involved. I am certainly more aware and appreciative of the mobility I have (even with my old ‘grandma bones’) after watching her. It is inspiring to witness her determination.

In retrospect, I think that last surgery was a huge blessing in disguise. The fact that they were able to successfully replace the piece of skull and allow her to be ‘helmet free’ has enhanced her efforts.

I don’t think she would mind me telling you that she has ‘moments’ when she is sad . . .how could it be otherwise. . . .but her determination to return to Albert and the girls. . .and to be an active participant in their ‘family life’ is formidable.

Teresa has been inspiring from the beginning as well and her commitment to Tami and her well being has touched me deeply.

Aunt Monica, Grandma Toni and all of Albert’s family have been amazing in assisting him and letting no family need slip through the cracks in St. George.

I encourage you to add comments here. . .we are sharing them with Tami.

Again, we all – express HEARTFELT GRATITUDE for the love, prayers, emotional and financial support of so many. THANK YOU! THANK YOU! THANK YOU! THANK YOU! THANK YOU!

Monday, October 20, 2008

Mon. Oct. 20th

From Teresa.. Yesterday, Sun. Tami had physical therapy schedualed at 11:30. At five to 11:00 she headed toward the gym. I told her we weren't supposed to be there for 30 more mins. She said we were paying big money for this stuff and she wanted to get at it! So Adam walked by and I told him. He said she could get on the mat and start exercizing. So she did. Three sets of 10 butt lifts and ten left leg lifts. (She couldn't do one leg lift on her own two days earlier.) She's determined to get home to her girls. Then she went up and down stairs with her brother Logan assisting. Then walked back to the room, exhasted but proud.

In the afternoon she was up for visitors and some friends from highschool arrived and later some relatives from St. George came by.

Today she's hard at it again. Doing stuff with her left leg that wasn't possible a few days ago! "GO GIRL!" Anyway... more later... Teresa.

Saturday, October 18, 2008

Sat. Oct 18th morning update

From Teresa... Well, Wed. afternoon Tami practiced getting in and out of a car. Then Thurs. after all the therapies Travis (her big brother) came out from Grand Junction, Co. with his wife Becky and their two kids Magnolia (Maggie , 4 years old) and Giacomo (Giac, pronounced Jack , 1 1/2 years old). Both Tami and I were on pins and needles waiting for them to arrive! Seeing the kids helped take the edge off missing her girls, but it's all she can think about these days. Anyway... Grandma Ann made it up too and then later that night Logan (her younger brother) showed up. We all (Tami included) went down to the hospital cafiteria for some food. It was nice.

On Friday Tami walked 140 feet down the hall without sitting to rest! Then she was cleared for an outing and got to go to the Noodles and Company resturant for lunch. I went with her and Travis and family and Grandma Ann met us there. The food was great and we all had a good time. Tami was tired when we got back, but said she liked it. Later in the day she had another "Modified Barium Swallow Test" and passed it with flying colors. The speech theripist said she has one of the cleanest and prettiest swallows she has ever seen. So now she is cleared to eat and drink anything she wants. YEAH! Travis immideately went downstairs and got her a milkshake. The left about 4:00 pm. to see Becky's mom and my parents in Vernal on their way home. (today is Travis' 29th birthday) Happy Birthday! We love you!

This morning Tami walked about 200 feet and is getting stronger every day. We are still hoping for something out of her "Nemo Fin"( Left arm. ) Anyway more later... Teresa.

Tuesday, October 14, 2008

Tues. Oct.14th

From Teresa... This morning Tami walked about 60 feet without a sitting break, and without her left foot aced bandaged up. Then this afternoon she went up and down the stairs twice. (about six steps each way). She also practiced up and down "curbes". I have been cleared to "walk her" with a belt around her waist and her quad-cane. She does well, but it drains her energy.

Speech therapy is working with her memory. She's doing great on that front. Her reading skills seem intact, except the "blind spot" on the far left side. (she needs to train herself to look farther to the left when she thinks she's done.)

Josh streched her arm musels and now they're sore, but hopefully it will wake them up and get them going again.

She is eating well but needs to put back on some weight. This morning without blankets and pillows on the bed she only weighed 96 pounds. We've asked for carrot cake. (500 calories per slice) Anyway...More later ...Teresa

Sunday, October 12, 2008

Sunday Oct. 12th

From Teresa... Friday afternoon the surgons' assistant Laura came in and removed the stitches in Tami's head. It is healing nicely. As she gets better I will do fewer updates. She has at least 6 sessions of therapy a day. She is working hard at them and we see daily improvement. The latest "wow" thing is her taking some steps with the cane that has four prongs on the bottom. Her therapist still has a belt around her waist and her left foot is strapped up with an ace bandage so it won't drag, but she is taking steps and moving both of her feet. She had several rests, but "walked" about 90 feet two days in a row. Today we took a day of rest.

Marc headed back to Florida about noon.Tami enjoyed seeing him again. He said he was going to miss her lopsided smile. So she had me take a picture of it and send it to him on his phone.

As she gets stronger, it gets harder for her to be away from her girls. She misses them terribly. Hopefully it won't be too long before she can be with them again. More later... Teresa.

Special Prayer

Grandma Ann says. . . I returned home late last night from work in MN. I received a card from my Aunt Devie that has the most perfect message on it. I know this has been the prayer of our hearts, but the words are so perfect I wanted to share:

"Dear Jesus:
You already know about this very special sheep of Yours. You made her. You saved her. And you've walked right beside her every day of her life. Now she's facing a tough time and I'm asking you to do what only You can do. Please scoop her up in Your almighty arms and carry her right next to Your loving heart so she'll know Your perfect love while You work out Your perfect plan for her.

I know you love her, and I love her, too!"

We all love Tami! I said in my first blog that Tami is the softest (gentlest) and strongest person I know. She still is. Thanks be to God and TO ALL OF YOU who are supporting Tami with your prayers, family care, contributions, warm thoughts, and love. She's coming back!!!!



Friday, October 10, 2008

NO MORE FEEDING TUBE! Oct.10th

From Teresa.... Tami ate so well yesterday and this morning the doctor didn't make her wait for tonight to get the feeding tube removed. It was out by 9:35 am. YEAH!!!! A few days ago the last IV came out. ( I didn't mention it for fear of jinxing anything.) It seemed like every time one thing came out, another went back in. So now the only things left to remove are the stitches in her head. She refers to her head as having a "cornrow" out of skin.

Lilli and I picked Grandpa Marc up at the airport around 2:00 pm yesterday. While I was gone Tami got a chance to try walking with a walker. She liked that. The girls got to help their mom with her therapy, handing her bean bags and tossing her balloons and balls. Albert, Lilli, and Ella went home to St. George around 4:00 pm. Logan came down after work last night for a visit. Marc is staying at a friend of mines rental house near here.

Today I've left him "Tami-Sitting". Until the afternoon therapies. I hate missing out on any progress. ( You should have seen my joy when they pulled that long nasty feeding tube out!) Anyway... More later... Teresa

Wednesday, October 8, 2008

Wed. Oct. 8th

From Teresa... Great news... Tami passed her swallow test, more or less. She gets to eat real food! Granted it has to be soft and cut up fine, but real none the less. The liquids have to still be thickened. (That goes for ice cream too, we asked.) The thickening agent is like putting " cream of wheat" in things, so some things just aren't worth it. As luck would have it , her very first meal in over a month was breaded cod. Tami hates fish and seafood. She will eat tuna fish but nothing else. So, she had the mashed potatoes, green beans, custard, and thickened cranberry juice. She still enjoyed it. Today she liked what she was offered. She needs to eat 1700 calories a day for three days to get the feeding tube removed. So we looked at the foods with the highest calorie count and focused on eating them first, and most. She reached her goal for today , two more days to go.

About her left side, she has more feeling in the left leg now and managed to get it to move slightly with a lot of effort and help and encouragement from Adam her physical therapist. It is really sore after her workouts and she has me put ice packs on it and needs a nap. It totally exhausts her. The left arm and hand has more feeling now but isn't moving on its own yet. Tami is getting better at helping us to maneuver her from bed to wheelchair and back.

Albert surprised her and brought her girls up tonight for a visit. Lilli was good with her but this time Ella was unsure about the whole situation. Aunt Rosemary came up and gave Tami a manicure and pedicure and put make up on her and a hat. Then she gave her a massage. Lilli wanted some too. It was fun. Anyway ...More later.. Teresa

Tuesday, October 7, 2008

Tues. morning Oct.7th

From Teresa... Yesterday Tami had all 6 of her regular therapies plus an extra half hour of occupational therapy. My brother Paul (a cardiac rehab therapist married to a physical therapist from Grand Junction, CO) came by at noon for a visit. He reminded us how important it is to keep using the breathing thing to keep her lungs healthy and strong. Also for those wondering, people are using the hand disinfectant when they visit, and the leg devices that pump up and help prevent blood clots have been in use.


On Sunday Tami had me get a hold of Devron to cut the half of her head that still had hair. Tami pestered me continually that last hour of her therapy about how soon Devron was coming. Thank goodness , Dev was early and waiting for us as we came out of the gym! She had her clippers ready and Tami now has a nice crew cut that can grow out at one even pace. Dev also gently washed her head with a warm washcloth, and her "nurse of the day" John put on fresh dressings over her stitches. I ran to curves while Dev was with Tami.

Tawyna came by with her little guy Bradley (14 months old). I think Tami enjoyed watching him. She's missing her daughters and looking forward to seeing them weekend after this. Bradley entertained us all.

Then Aunt Rosemary stopped by and massaged Tami's hips, back , and legs. That helped relax her and ease her sore muscles.

Tami's dad Marc is flying in from Florida on Thursday afternoon, and plans to help out with her rehab. He flies back Sun. afternoon. She's looking forward to seeing him, but is afraid he might be a "woose" when he sees her. Oh well, so what if he is. Anyway ...more later... Teresa

Saturday, October 4, 2008

Saturday Night

This was posted by Albert in the comments section and he asked me to copy it to here, so it wouldn't get missed.
Albert said...
I want to thank each and every one that has helped. I am so humbled by the support we have received from everybody.We as a family are so blessed that you have reached out and touched our lives.This experience has been nonforgetful and I need everybody to know that I'm grateful for the help and honored that you have helped in any way you can.I am the kind of person who always tries to do and handle everything on my own and this has been amazing. so thank you from the bottom of my HEART. Sincerely :Albert
October 4, 2008 9:10 PM

Albert said...
My Tami looks so much better and sounds so wonderful it is truly a miracle all of our prayers are being answered and looked at. This has been one of the most trying experiences ever and it's not over yet. Tami is making progress so fast it's amazing. I have been so happy to see her this visit she is a strong person and i admire her for her strength and will. I always knew she was incredible and I was lucky to fall in love with her and to have her fall in love with me..That night I ran after her in our church parking lot was for a darn good reason.If you don't know that's when we first met the best and beginning of my life.. Thank you Albert...
October 4, 2008 9:26 PM

Sat.Oct. 4th

From Teresa... Each day Tami can do just a tiny bit more than the day before. Baby steps. .. It's frustrating to her that she can't just jump out of bed and do everything for herself. (It would drive me nuts if I were in her place too.) I try to remind her how far she has come, but she just sees what she can't do yet. I know it's got to be hard. That's probably why there is a psychologist for the rehab floor and everyone is scheduled to see her automatically. Albert and Logan were both here today so I took advantage of them and ran some errands. It was nice to get out of the hospital for a break longer than just my workout at curves. I'm not whining, Tami has the hard part. I'm glad I CAN walk out of this building.

I do want to say "Bless You" to Aunt Monica for getting up and over to Albert's home every morning before 5:00 am so he can be to work on time and keep the bills caught up. Also to the rest of the family that shows up to help out throughout the day until Albert gets home from work. We each play our part, and it truly is appreciated. Those of you that live far away don't think you're not part of the process. Your prayers are priceless!!! We are counting on them! (prayers are not the Least that you can do... they are the Most that you can do!) We do believe in Miracles.

Anyway...thanks again... more later..Teresa

Friday, October 3, 2008

evening update, Oct. 3rd

From Teresa... Albert arrived so I gave them some "alone time" and came downstairs to add an update. Tami got another shower today from one of our favorite nurses "Debbie". Then she had an appointment for a neck and shoulder massage. At least she was able to relax and enjoy this one, (unlike the one last Fri. when she was in so much pain.) Her body is sore, but I think it's from all the hard work in therapies all day. Anyway ..more later ...Teresa

Friday,Oct.3rd

From Teresa... Rehab,Rehab,Rehab...Yesterday and today Tami has been working her bottom off. The x-ray yesterday showed the lungs were looking better so she was taken off the oxygen mask she had on all night and day. If the x-ray from today still looks good, the oxygen goes out of the room. (she will have x-rays for the next 5 days to keep on top of things.) One IV came out today. Only one still in for back up. It's not in use right now. The feeding tube is still in. She is getting yogurt etc. from the speech therapist twice a day and doing better each time.

She is getting more sensation in the left leg and arm.

Albert is coming up tonight. The girls will stay at Aunt Pattys. More later...Teresa

Wednesday, October 1, 2008

The Yard Sale Was A Huge Success

Hello Everyone- Sorry it has taken me so long to post the results of our sale. My computer has been down.
Anyway, the yard sale was a huge success! As you can see we had a lot of stuff to sell. By the end of the day we still had quite a bit left over, but had sold quite a bit as well.
Between sales and donations left with us that day we made over $1,000.00!!! That is awesome! It was truly amazing to witness the kindness of people, both friends and strangers. A woman who has never met Tami or her family told me that she just happened to read Tami's flyer at the down town Curves. She has checked the blog daily since then and is praying for Tami's recovery. She donated a case of tote bags to our yard sale and left us with a check to deposit into Tami's account. This is just one of the many amazing people that are thinking of and praying for Tami everyday.
Another gentleman just stopped by to check out the sale when he stopped to read Tami's flyer that we had posted. He belongs to a motorcycle club that is committed to helping out people in need. He asked to take a copy of the flyer so that he could see about getting some additional help for Tami and her family from his motorcycle club.
The entire day was very uplifting for me. It touched my heart to see all of these people genuinely concerned for our Tami and willing to help her out by making a purchase or a donation.
I must thank everyone who helped out at the sale that day. Devron, Sherry, Lisha, Grandma Ann, Riley, Patti, Chad, Andrea, the entire Goodfellow Family, and everyone who donated their stuff. This yard sale would not have been as successful without all of you. Thank you , thank you, thank you.


BODY WORLD TKTS DONATED

We have had four tickets to the incredible BODY WORLD 3 Exhibit in SLC donated for fundraising. ($22 value ea) Call Aunt Patty (435-229-3675) if you are interested. The website to get more information about the exhibit is http://theleonardo.org

This is the lead paragraph on the website: Gunther vonHagens' BODY WORLDS 3 & The Story of the Heart presents the form, function, complexity and beauty of the human body. Featuring a unique collection of more than 200 authentic human specimens including whole-body plastinates, organs and translucent body slices, this exhibit offers visitors profound insights in the human body, health and disease, and the intricate world of the cardiovascular system.

Thanks again for all the love, faith, generosity and support.

Wed. Oct. 1st

From Teresa...The CT scan taken at 5:00am today looked good. The doctors don't want to give her blood thinners for at least 6 weeks in case she needs any more procedures. So they are now putting in a filter to catch any blood clots from her legs that could travel toward her heart or lungs. It gets inserted from her groin area up a vein right below her heart area. Then she will get taken back up to rehab on the 12th floor to her old room. (I've been holding our reservation by staying there at night.)

She is sore today and her eyes are swollen shut. But she can hear and talk. Fr. Bob Bussen popped in again today to see how she was doing. He gave her another blessing. After he left she said "Get the priest", I asked why? She said "I need lots of blessings". I told her his blessings were strong and one was enough for today.

Anyway...More later..Teresa