Mon. Dec. 22, 2008

From Teresa... We were concerned that Tami might have some hearing loss in her left ear. We hadn't noticed any problems when we spoke to her, but when she tried to listen to an ipod she kept asking Albert to turn up the left side. So we got a referral to an audiologist and were able to get in today and have her checked. No damage! Yeah!!! Everything is in the normal range. Maybe there was a problem with the ipod. Anyway... Tami said "At least that's one thing the stroke didn't get!

"Wonderful friends and family have really kicked in for Christmas for Tami's family. THANK YOU ALL!!! We will spend it here in St. George. Merry Christmas and a Healthy and Happy New Year to you all! I don't think we will get to sending out Christmas cards this year so this will have to suffice. Know that you are LOVED and APPRECIATED. More later...Teresa.

Mon. Dec.15th

From Teresa... Last Wednesday's blood work number was a little high, 3.5 (The doctor wants it between 2 and 3). So she had us drop the dose a bit for one night and have Tami eat more dark green veggies or salads. The green stuff contains vitamin K ,which helps your blood clot. We went back in for another check Fri. morning and it was down to 2.2 . So back up to the regular dose except on Wed. we drop it down a notch, and only have to check it every two weeks now. Yeah!

On Thurs. at noon there is a" stroke support" group meeting. Albert, Grandma Ann, Tami, and I all hope to go to it. (I just need to line up a sitter for the girls still.) Tami's really hoping to gain some insight on how other people deal with their stroke challenges.

Tami is improving more each day at her therapy sessions. (baby steps). Her hair is about 1/2 inch long now and looks really cute with some hair gel in it. It has her natural curl and it's hard to see the scar anymore. Her daughters have us laughing all day long with what they say and do. They give her the motivation to keep hanging in there. One of her main goals is to be able to pick up and carry Ella again. Anyway...More later...Teresa.

Wed. Dec 10th

From Teresa... Well on Mon. Dec. 1st the blood work was good enough to be done with the Heprin shots in the stomach! Yeah!!! On Wed. she had the EEG tests, but we have yet to have anyone tell us the results to them. She met with her new family doctor and he's really good. (I will probably use him myself if I need a doctor for anything.) He suggested we could get the blood work done at his clinic if we wanted. It is 5 min. from Tami's house instead of 15. So for Thursdays blood work we went there. It was great. They only had to prick her finger instead of drawing blood from her arm, and we knew the results in three minutes! By the time we got home, her blood doctor had the results and was calling us to tell us to keep on the same dosage as before.

Tami is walking with her cane again around the house. We still use the wheelchair when we leave home. But this morning she walked from the car to the clinic and back out again after the blood work. It's too far right now to make her walk to and from the rehab place. It's a big parking lot and on the 3rd floor. She would be wiped out before she even got started if she tried walking the whole way there. There is improvement happening in all three therapies. Still no controlled movement with the left arm but the range of motion is better.

Tomorrow she has an evaluation with the neuropsychologist. The way I understand it, he finds out what works in her brain, and what needs attention and help. It should take between 2 and 4 hours. Then she has the regular afternoon therapies. So it will be a long day. Albert is taking Tami one day a week to her therapies while I tend the girls. That way he can see how she's doing and learn how to help her get around.

Ella is getting a little more comfortable around her mom now, and Lilli is sweet and helpful. Happy 26th Birthday to Logan tomorrow.(Dec. 11th) More later...Teresa.

Wed. Nov.26th

From Teresa... We went for blood work on Mon. hoping to hear the numbers were between 2 and 3. They were only 1.2 so the cumidin was increased and shots continued. Another blood draw this morning with new hope, but the level was only up to 1.4, so another increase in the pill dose and more shots until the next blood draw on Mon. morning. Poor Tami keeps thinking we are finished with the shots and it just isn't so. The good news is eventually we will get the proper dosage and really be done with the needles.

All three therapists gave her homework over the holiday weekend. She is finally able to put a little weight on her left leg again although the fall has shaken her confidence in her ability to walk . The OT has her rolling on her left side to remind her body that it's still part of her. That helps put weight and pressure on the shoulder muscles and joint.(which is a good thing.) He feels that she will be able to get use of her left arm and hand again. I was very glad to hear that! Speech is working on her voice control and volume, along with math and cognitive skills.

Monday night she was so sore from the workouts that we took up the Massage Envy people on their offer of a free massage for both her and I. We were in the same room together so I could help her dress and get on and off the table. It was fabulous! We both LOVED it. They were great with us, so patient and gave us each the type of massage we requested. We are looking foreword to the next visit.

Thanksgiving will be spent with Albert's family up at his grandma Toni's house in Enterprise.We have a lot to be thankful for this year! Wishing each and every one of you a Happy and Healthy Thanksgiving. More later...Teresa.

Thurs. Nov.20th

From Teresa... Well we're home and trying to figure out some kind of routine. There are PT , OT, and speech therapy to go to three times a week at the Dixie Regional Medical Center. Sweet relatives have come to the house to be with the girls while I run Tami to all of her appointments. We have a new neurologist that had his own stroke at the age of 21. He went on to become the doctor he is today. He encouraged Tami to decide what her goals are and work until she gets them. He scheduled a sleep deprived EEG for Dec. 3rd. She needs to only get 4 hours of sleep the night before. ( I'm still trying to figure out how to work it so I'm not sleep deprived along with her.) After evaluating the results of that test he will determine whether or not she needs to continue taking the Keppra medication. (It is routinely given to anyone that has had brain surgeries to prevent seizures.) It's also the $500.00 a month drug, without a good generic substitute. Her next apt. with him is scheduled for the end of Jan.

The hematologist (blood doctor) informed us that Tami was low on her "protein S" that is one of the things that your body uses to help the balance of clotting and thinning of the blood. That was probably the cause of the clot that caused the stroke in the first place. The way to deal with the problem is with blood thinners for the rest of your life. Today the Doctor informed us that we can ween off the Heprin shots and on to the Cumidin pills once a day at bedtime. Yeah! We still have to do the shots through Mon. morning along with the pills, at which time if Mondays test show the levels where they need to be , we can stop the injections. I CAN'T WAIT! The pills are much cheaper and there is a generic that can be used. She still has to get regular blood draws to monitor the levels but after shots in the gut that burn, that seems minor! The protein S thing is genetic so the Doctor recommended that at some point we get me and Tami's girls checked for it. It can be done in a blood test. I asked if there was any urgency to check the girls and he said "no". Just in the future.

I got a library card so that I can access the internet once in a while. It's hard to get away for very long so Grandma Ann may be doing most of the updates. The "silver lining" to being here helping to take care of "my beautiful girls" is that this is a fantastic place to spend the winter. I'm savoring the sunshine. Anyway...More later Teresa.

OVERDUE - REPORT ON TAMI. . . .

Sorry we haven't posted for so long. It has been a whirlwind since Tami got home. Assisting Tami, scheduling multiple appointments, making arrangements for child care during appointments, routine household duties such as laundry, meal prep, potty training. . .are things Teresa does every day. Albert's family has continued to help with the children and they are so loved for that. I'm nominating Teresa and Aunt Monica for 'Angel of the Year awards.

Albert and the girls are so happy to have her home and she is very happy to be there. She got to go to Uncle Dave's birthday party last week.

Tami fell about a week after returning home. It was a one-step fall, but it bruised her fragile little body. Earlier that same day two of the therapists at the hospital asked her if she had fallen and they were stunned that she had not. I guess it's inevitable. She has been examined and x-rayed and thankfully nothing was broken, but it has been very painful and she can't put weight on her left leg, so the walking therapy has taken a set-back.

She has met her Neurologist, Hemotologist, physical therapist, occupational therapist and speech therapist. She still has to meet with her (new) family physician. There is SO much to do.

Tami was hoping to get off shots, but must continue for now. I'll have Teresa go more into that. The Hemotologist has given them new information about the blood disorder (clotting factor) that probably caused the stroke (something to do with Protein S, which I have never heard of). I will have 'Dr. Teresa' write about that soon. She 'gets' the medical jargon.

Please don't give up on the blog. . .we will continue to post, but probably not as often. We often think of you all and mention we need to 'blog' . . . but 'Life' has us all very busy.

I know she would appreciate cards, or text messages. We are so grateful for your continued prayers and support. Thank You! Thank You! Thank You!

TAMI’S HOMECOMING – Saturday, November 8th

A birthday party was planned so the little girls and Albert could help her celebrate the birthday she missed while she was in a coma in Salt Lake. Here’s what Tami said:
“I am so excited and grateful to be HOME. Albert made his special hamburgers and a wonderful birthday cake. Lilli put my tiara on me (the one ‘Aunt Riley’ bought for my helmet) and they sang Happy Birthday. Lilli was so excited and sweet. . she is Mommy’s little helper…so caring and gentle. It is awesome to hear all of Ella’s new words. Ella watched me walk down the hall last night (I throw my left leg out a bit ) and she was trying to walk like me. Lilli got all excited and ran down the hall saying, Mommy went potty on the big girl potty. I have tried to explain to Lilli that there are ‘sad cries’ and’ happy cries.’ She just came up to me and asked me to ‘CRY HAPPY.’ THEY ARE SO FUN! Albert told Lilli he would clean up after Ella if she would clean up after me. We are very glad to have our family together. Thanks again to Aunt Monica and Albert’s family for taking such good care of our babies. We’ll still need help, I’m sure. And Thanks to Teresa, she has been a trooper. She has always said she could never be a nurse because she doesn’t like needles and she could NEVER give a shot. She is NOW giving me blood thinner shots twice a day. We both hope I don’t have to take them forever. Thanks Mom!”

Note from Grandma Ann: What a thrill to see Tami at home with her family. Tami reported on the fun stuff. . .I’ll tell you a little about the transition. Albert is installing a new toilet today that will be easier for Tami to use and they are evaluating where hand rails will be most helpful. We have picked up the first of the medications and one prescription (1 mo) cost almost $500. After insurance, it only cost $170. . .what a bargain (actually I should say ‘what a blessing!’)

This next week is a lot of NEW . . .new doctors, new out-patient physical therapy sessions. . .many adjustments. Tami rarely lets anyone see her discouraged (but we know that has to be an occasional reality). She is determined and goal oriented. Thanks again for all of your prayers, love and support. Thank You! Thank You! Thank You!

Exit plans being made!

From Teresa... After Tues. evaluations by the staff they informed us that Tami has met the goals they had set for her to achieve before release. So we get to go home after the Sat. therapies. Nov. 8th! YEAH! Marc is flying out from Florida again today, and my mom and sister Dolores are coming out to see Tami tomorrow around noon. My sister Becky and Devron were out on Mon. afternoon to say hi! Tami and I will drive down to St. George in my car Sat. afternoon so we hope to be with Albert and the girls for supper. Tami is counting the hours! More later...Teresa.

Tues. Nov.4th

From Teresa... I've been worried about the tightening of Tami's left underarm and shoulder muscles. On Sat . the therapist did some deep tissue work trying to release the tightness in it. She started to get nauseous. Then we had an outing to the Noodles and Company restaurant.
She still wasn't feeling too great. So we cut it short and went back to the room for a nap. They went easy on the two afternoon sessions and back to bed to rest. She ate a few saltines and some sprite and up came lunch. The next day was Sun. and we had already chosen to take the day off. No therapies. But Tami made the mistake of telling the Dr. she still felt a little nauseous. He ordered a full blood work up and a urine test. The good news is the results all came out normal. The next time anyone asks she will tell them she feels "just fine", unless it's something more than an upset tummy.

The last 4 days Adam (physical therapist) has had her walking without her cane the whole "loop" of the rehab floor. He holds her left arm and around her waist with the gait belt. She was petrified the first time, but today she was doing quite well. After that she practiced the six stairs up and down repeatedly.

During occupational therapy she has a little more stretch than last week and Beth was able to get her to squeeze her fingers a little. This is the first time Tami could tell when she was doing the squeezing herself. That was exciting! More Later...Teresa.

RECOVERY INCLUDES CHALLENGES

GRANDMA ANN SAYS. . . . . . .Our precious Tami is a MIRACLE. Thank you to IMC and the incredible staff for their efforts and expertise on this challenging road to recovery.

When things work. . . .we are anxious to share her wonderful progress with the world. We are so proud of her determination, attitude and strong will . .but along the way. . .the ‘real’ world of Tami’s physical therapy also includes anxiety, fear, PAIN and discouragement.

The last day I spent in Salt Lake with her (Wed, 10/30) was particularly difficult. The work on her left arm was excruciating. Our “Tami-no-tears” shed tears as BIG as her pretty blue eyes. (Grandma joined her.) When she walks, she gets from point A to point B. . . . .but the absolute concentration and effort it takes is impossible for me to describe. When they want her to stand or take steps without the cane it is FRIGHTENING! She can’t depend on her limbs. My words are inadequate in expressing the difficulty.

That evening I asked her if there was anything she would like me to write for the blog. She didn’t say anything, but I could see the wheels turning. . . I waited and then I said, “This sucks?” (I don’t usually use that phrase, but I thought I was reading her mind.) She nodded in agreement.

She called me later that night and told me a couple of things that I could write on the blog. “Thank heavens for Lilli and Ella. They’re keeping me going. I think I’ve gone through some hard times, but this is the hardest thing I can ever imagine going through. I hope God doesn’t try to top this.”

Tami is excited to be going home. . .I know Albert and the girls are excited to have her home. We will all try desperately to make that transition go smoothly and support her in the long and difficult road ahead. She is looking forward to reconnecting with family and friends in St. George.

Thank you for keeping Tami in your prayers. Thank you for your love and support. Thank You! Thank You! Thank You!

Wed. Oct 29th

From Teresa... Tami says "I must be getting better because all my therapists are increasing the intensity of my workouts. Even the speech lady has me doing 3 digit math problems!" On Mon. she had to go up and down a flight of stairs without her cane. It scared her to death to come down, but she did it! She also walked the whole parameter of the rehab floor. (It's about 400 feet.)

We set up an eye exam at the Cosco right behind the hospital for Tues. afternoon. We went in the wheelchair and walked over to it. She got a new prescription for glasses and soft contacts. The adventure wore her out, but she can see and read better now.

Today in occupational therapy we pinpointed some "tone" in the left arm and shoulder area. It was very painful to stretch out. So she will be focusing on working on it during "down time" to try to avoid permanent damage. Grandma Ann is visiting now and will remind her to work with it.

Aunt Rosemary was up last night and gave her another hip massage.That felt great as always. Riley and Patty stopped by during her lunch break. They were amazed at how much better she looks compared to 4 weeks ago, (before the last surgery.)

Right now it looks like she will be going home to St. George on Nov. 10th. Yeah!!! Until then she is trying to get the most out of all her therapies. She will have out-patient rehab down there. More later...Teresa.

Sun. Oct. 26th

From Teresa... Earlier in the week an ultra sound was done on Tami's legs and the blood clots were gone. So the Doctors wanted to remove the filter planted below her heart. It went in from the groin area and up a vein. It gets removed by going into the neck area and pulling it out through there. So about 11:30 on Thurs. a new IV line was needed. It took two different nurses and 4 tries to finally get one in! Yuck! Then Tami wasn't allowed to eat or drink anything until after the proceedure. So we waited, and waited, and waited, and waited.... AT 3:00 p.m. They called and said it would be two more hours because of all the emergency cases that kept comming in. At 5:00 p.m. my baby was really hungry and I've been trying to put weight back on her! This was not helping my cause! I kicked into "Mama Bear" mode. I told them either get her in or" Feed " her and do it tommorrow. They came back and said they were still three hours away and she could eat and go for it again tommorrow. She chose to EAT! It was the best pasta she had had all week! (Also she had been schedualed for an outing to Rumbis Island Grill for lunch that day followed by Stone Cold Creamery for dessert. It had been reschedualed.) So she was supposed to be the first patient at 7:30 a.m. on Friday. We were up and showered and dressed by 7:30. I checked with the nurses desk to see where we were on the plan for the day. They asked how Tami's clotting times were. I said nobody had been in to take any blood samples since last Sat. and she had the blood thinner shot the night before at 9:00 p.m.! So a blood sample was ordered stat. An hour later it came back o.k. I was still in "Mama Bear" mode so I warned the nurses I would be checking on things every hour on the hour. It was 12:00 noon when she was finally taken down to get it done. It was 1:30 p.m. when she was finished. All went well, although the doctor said her veins were dehydrated and he had a little difficulty with them.

Logan had arrived while she was getting it taken out. As soon as she was back in her room she was fed. The harp lady showed up and played for her while she ate.

Later, Albert and her girls arrived. Ella still doesn't like the whole hospital thing and the way her mom looks. But Lilli is just a doll with her mom. Feeding her, handing her things, loving her, and comforting her. So on Sat. Tami got to go on her outing for lunch. Ella was napping when we left so they joined us in time for the ice cream. Last night Lilli stayed the night with her mom and I. She was great and Tami loved it! They head back to St. George this afternoon. Anyway... More later.. Teresa.

Sun. Oct.26

From Teresa...

"NEMO FIN" WORKS! WED. OCT.22

From Teresa... During the last few physical therapies when Tami lies on her back with her legs over a bolster, and lifts her left leg, the bicep muscle in her left arm would flex. Yesterday during occupational therapy she acctually got some response out of her left arm! YEAH!!! It took everything she had to repeat it again and again. (about 6 times) Finally!!!! I'm hoping now that it's awakened, things will progress faster. I kept telling her she could be the best one handed massage therapist in St. George, but I really hoped that wouldn't need to be the case. She really misses her job and clients and is looking foreward to getting back to them all.

On Opra yesterday the Dr. that wrote the book "My Stroke of Insight" was interviewed along with Dr. Oz. Tami and I watched it together. It was so enlightening! She enjoyed seeing that she wasn't alone in the things she is dealing with and comparing the symtoms she has and the ones she was blessed not to have. (Tami has all her speech capabilities, THANK GOD!) Anyway I'm glad her dad in Florida called and gave me the heads up that it was on, and because of the time difference we were able to watch it. More Later..Teresa

Grandma Ann reporting. . . .

When I got back to Salt Lake last Thursday, I hadn’t seen Tami for over two weeks. . they moved her back to ICU the day I had to leave for St. George and she had the 3rd surgery the next day. I was so SAD and FEARFUL! It is only three weeks today since that surgery!

I am STUNNED by her progress. She is working so hard . . . it is difficult to put into words the magnitude of the ‘EFFORT’ involved. I am certainly more aware and appreciative of the mobility I have (even with my old ‘grandma bones’) after watching her. It is inspiring to witness her determination.

In retrospect, I think that last surgery was a huge blessing in disguise. The fact that they were able to successfully replace the piece of skull and allow her to be ‘helmet free’ has enhanced her efforts.

I don’t think she would mind me telling you that she has ‘moments’ when she is sad . . .how could it be otherwise. . . .but her determination to return to Albert and the girls. . .and to be an active participant in their ‘family life’ is formidable.

Teresa has been inspiring from the beginning as well and her commitment to Tami and her well being has touched me deeply.

Aunt Monica, Grandma Toni and all of Albert’s family have been amazing in assisting him and letting no family need slip through the cracks in St. George.

I encourage you to add comments here. . .we are sharing them with Tami.

Again, we all – express HEARTFELT GRATITUDE for the love, prayers, emotional and financial support of so many. THANK YOU! THANK YOU! THANK YOU! THANK YOU! THANK YOU!

Mon. Oct. 20th

From Teresa.. Yesterday, Sun. Tami had physical therapy schedualed at 11:30. At five to 11:00 she headed toward the gym. I told her we weren't supposed to be there for 30 more mins. She said we were paying big money for this stuff and she wanted to get at it! So Adam walked by and I told him. He said she could get on the mat and start exercizing. So she did. Three sets of 10 butt lifts and ten left leg lifts. (She couldn't do one leg lift on her own two days earlier.) She's determined to get home to her girls. Then she went up and down stairs with her brother Logan assisting. Then walked back to the room, exhasted but proud.

In the afternoon she was up for visitors and some friends from highschool arrived and later some relatives from St. George came by.

Today she's hard at it again. Doing stuff with her left leg that wasn't possible a few days ago! "GO GIRL!" Anyway... more later... Teresa.

Sat. Oct 18th morning update

From Teresa... Well, Wed. afternoon Tami practiced getting in and out of a car. Then Thurs. after all the therapies Travis (her big brother) came out from Grand Junction, Co. with his wife Becky and their two kids Magnolia (Maggie , 4 years old) and Giacomo (Giac, pronounced Jack , 1 1/2 years old). Both Tami and I were on pins and needles waiting for them to arrive! Seeing the kids helped take the edge off missing her girls, but it's all she can think about these days. Anyway... Grandma Ann made it up too and then later that night Logan (her younger brother) showed up. We all (Tami included) went down to the hospital cafiteria for some food. It was nice.

On Friday Tami walked 140 feet down the hall without sitting to rest! Then she was cleared for an outing and got to go to the Noodles and Company resturant for lunch. I went with her and Travis and family and Grandma Ann met us there. The food was great and we all had a good time. Tami was tired when we got back, but said she liked it. Later in the day she had another "Modified Barium Swallow Test" and passed it with flying colors. The speech theripist said she has one of the cleanest and prettiest swallows she has ever seen. So now she is cleared to eat and drink anything she wants. YEAH! Travis immideately went downstairs and got her a milkshake. The left about 4:00 pm. to see Becky's mom and my parents in Vernal on their way home. (today is Travis' 29th birthday) Happy Birthday! We love you!

This morning Tami walked about 200 feet and is getting stronger every day. We are still hoping for something out of her "Nemo Fin"( Left arm. ) Anyway more later... Teresa.

Tami Passed Her Swallow Test

Tues. Oct.14th

From Teresa... This morning Tami walked about 60 feet without a sitting break, and without her left foot aced bandaged up. Then this afternoon she went up and down the stairs twice. (about six steps each way). She also practiced up and down "curbes". I have been cleared to "walk her" with a belt around her waist and her quad-cane. She does well, but it drains her energy.

Speech therapy is working with her memory. She's doing great on that front. Her reading skills seem intact, except the "blind spot" on the far left side. (she needs to train herself to look farther to the left when she thinks she's done.)

Josh streched her arm musels and now they're sore, but hopefully it will wake them up and get them going again.

She is eating well but needs to put back on some weight. This morning without blankets and pillows on the bed she only weighed 96 pounds. We've asked for carrot cake. (500 calories per slice) Anyway...More later ...Teresa

Sunday Oct. 12th

From Teresa... Friday afternoon the surgons' assistant Laura came in and removed the stitches in Tami's head. It is healing nicely. As she gets better I will do fewer updates. She has at least 6 sessions of therapy a day. She is working hard at them and we see daily improvement. The latest "wow" thing is her taking some steps with the cane that has four prongs on the bottom. Her therapist still has a belt around her waist and her left foot is strapped up with an ace bandage so it won't drag, but she is taking steps and moving both of her feet. She had several rests, but "walked" about 90 feet two days in a row. Today we took a day of rest.

Marc headed back to Florida about noon.Tami enjoyed seeing him again. He said he was going to miss her lopsided smile. So she had me take a picture of it and send it to him on his phone.

As she gets stronger, it gets harder for her to be away from her girls. She misses them terribly. Hopefully it won't be too long before she can be with them again. More later... Teresa.

Special Prayer

Grandma Ann says. . . I returned home late last night from work in MN. I received a card from my Aunt Devie that has the most perfect message on it. I know this has been the prayer of our hearts, but the words are so perfect I wanted to share:

"Dear Jesus:
You already know about this very special sheep of Yours. You made her. You saved her. And you've walked right beside her every day of her life. Now she's facing a tough time and I'm asking you to do what only You can do. Please scoop her up in Your almighty arms and carry her right next to Your loving heart so she'll know Your perfect love while You work out Your perfect plan for her.

I know you love her, and I love her, too!"

We all love Tami! I said in my first blog that Tami is the softest (gentlest) and strongest person I know. She still is. Thanks be to God and TO ALL OF YOU who are supporting Tami with your prayers, family care, contributions, warm thoughts, and love. She's coming back!!!!

NO MORE FEEDING TUBE! Oct.10th

From Teresa.... Tami ate so well yesterday and this morning the doctor didn't make her wait for tonight to get the feeding tube removed. It was out by 9:35 am. YEAH!!!! A few days ago the last IV came out. ( I didn't mention it for fear of jinxing anything.) It seemed like every time one thing came out, another went back in. So now the only things left to remove are the stitches in her head. She refers to her head as having a "cornrow" out of skin.

Lilli and I picked Grandpa Marc up at the airport around 2:00 pm yesterday. While I was gone Tami got a chance to try walking with a walker. She liked that. The girls got to help their mom with her therapy, handing her bean bags and tossing her balloons and balls. Albert, Lilli, and Ella went home to St. George around 4:00 pm. Logan came down after work last night for a visit. Marc is staying at a friend of mines rental house near here.

Today I've left him "Tami-Sitting". Until the afternoon therapies. I hate missing out on any progress. ( You should have seen my joy when they pulled that long nasty feeding tube out!) Anyway... More later... Teresa

Wed. Oct. 8th

From Teresa... Great news... Tami passed her swallow test, more or less. She gets to eat real food! Granted it has to be soft and cut up fine, but real none the less. The liquids have to still be thickened. (That goes for ice cream too, we asked.) The thickening agent is like putting " cream of wheat" in things, so some things just aren't worth it. As luck would have it , her very first meal in over a month was breaded cod. Tami hates fish and seafood. She will eat tuna fish but nothing else. So, she had the mashed potatoes, green beans, custard, and thickened cranberry juice. She still enjoyed it. Today she liked what she was offered. She needs to eat 1700 calories a day for three days to get the feeding tube removed. So we looked at the foods with the highest calorie count and focused on eating them first, and most. She reached her goal for today , two more days to go.

About her left side, she has more feeling in the left leg now and managed to get it to move slightly with a lot of effort and help and encouragement from Adam her physical therapist. It is really sore after her workouts and she has me put ice packs on it and needs a nap. It totally exhausts her. The left arm and hand has more feeling now but isn't moving on its own yet. Tami is getting better at helping us to maneuver her from bed to wheelchair and back.

Albert surprised her and brought her girls up tonight for a visit. Lilli was good with her but this time Ella was unsure about the whole situation. Aunt Rosemary came up and gave Tami a manicure and pedicure and put make up on her and a hat. Then she gave her a massage. Lilli wanted some too. It was fun. Anyway ...More later.. Teresa

Tues. morning Oct.7th

From Teresa... Yesterday Tami had all 6 of her regular therapies plus an extra half hour of occupational therapy. My brother Paul (a cardiac rehab therapist married to a physical therapist from Grand Junction, CO) came by at noon for a visit. He reminded us how important it is to keep using the breathing thing to keep her lungs healthy and strong. Also for those wondering, people are using the hand disinfectant when they visit, and the leg devices that pump up and help prevent blood clots have been in use.


On Sunday Tami had me get a hold of Devron to cut the half of her head that still had hair. Tami pestered me continually that last hour of her therapy about how soon Devron was coming. Thank goodness , Dev was early and waiting for us as we came out of the gym! She had her clippers ready and Tami now has a nice crew cut that can grow out at one even pace. Dev also gently washed her head with a warm washcloth, and her "nurse of the day" John put on fresh dressings over her stitches. I ran to curves while Dev was with Tami.

Tawyna came by with her little guy Bradley (14 months old). I think Tami enjoyed watching him. She's missing her daughters and looking forward to seeing them weekend after this. Bradley entertained us all.

Then Aunt Rosemary stopped by and massaged Tami's hips, back , and legs. That helped relax her and ease her sore muscles.

Tami's dad Marc is flying in from Florida on Thursday afternoon, and plans to help out with her rehab. He flies back Sun. afternoon. She's looking forward to seeing him, but is afraid he might be a "woose" when he sees her. Oh well, so what if he is. Anyway ...more later... Teresa

Saturday Night

This was posted by Albert in the comments section and he asked me to copy it to here, so it wouldn't get missed.
Albert said...
I want to thank each and every one that has helped. I am so humbled by the support we have received from everybody.We as a family are so blessed that you have reached out and touched our lives.This experience has been nonforgetful and I need everybody to know that I'm grateful for the help and honored that you have helped in any way you can.I am the kind of person who always tries to do and handle everything on my own and this has been amazing. so thank you from the bottom of my HEART. Sincerely :Albert
October 4, 2008 9:10 PM

Albert said...
My Tami looks so much better and sounds so wonderful it is truly a miracle all of our prayers are being answered and looked at. This has been one of the most trying experiences ever and it's not over yet. Tami is making progress so fast it's amazing. I have been so happy to see her this visit she is a strong person and i admire her for her strength and will. I always knew she was incredible and I was lucky to fall in love with her and to have her fall in love with me..That night I ran after her in our church parking lot was for a darn good reason.If you don't know that's when we first met the best and beginning of my life.. Thank you Albert...
October 4, 2008 9:26 PM

Sat.Oct. 4th

From Teresa... Each day Tami can do just a tiny bit more than the day before. Baby steps. .. It's frustrating to her that she can't just jump out of bed and do everything for herself. (It would drive me nuts if I were in her place too.) I try to remind her how far she has come, but she just sees what she can't do yet. I know it's got to be hard. That's probably why there is a psychologist for the rehab floor and everyone is scheduled to see her automatically. Albert and Logan were both here today so I took advantage of them and ran some errands. It was nice to get out of the hospital for a break longer than just my workout at curves. I'm not whining, Tami has the hard part. I'm glad I CAN walk out of this building.

I do want to say "Bless You" to Aunt Monica for getting up and over to Albert's home every morning before 5:00 am so he can be to work on time and keep the bills caught up. Also to the rest of the family that shows up to help out throughout the day until Albert gets home from work. We each play our part, and it truly is appreciated. Those of you that live far away don't think you're not part of the process. Your prayers are priceless!!! We are counting on them! (prayers are not the Least that you can do... they are the Most that you can do!) We do believe in Miracles.

Anyway...thanks again... more later..Teresa

evening update, Oct. 3rd

From Teresa... Albert arrived so I gave them some "alone time" and came downstairs to add an update. Tami got another shower today from one of our favorite nurses "Debbie". Then she had an appointment for a neck and shoulder massage. At least she was able to relax and enjoy this one, (unlike the one last Fri. when she was in so much pain.) Her body is sore, but I think it's from all the hard work in therapies all day. Anyway ..more later ...Teresa

Friday,Oct.3rd

From Teresa... Rehab,Rehab,Rehab...Yesterday and today Tami has been working her bottom off. The x-ray yesterday showed the lungs were looking better so she was taken off the oxygen mask she had on all night and day. If the x-ray from today still looks good, the oxygen goes out of the room. (she will have x-rays for the next 5 days to keep on top of things.) One IV came out today. Only one still in for back up. It's not in use right now. The feeding tube is still in. She is getting yogurt etc. from the speech therapist twice a day and doing better each time.

She is getting more sensation in the left leg and arm.

Albert is coming up tonight. The girls will stay at Aunt Pattys. More later...Teresa

The Yard Sale Was A Huge Success

Hello Everyone- Sorry it has taken me so long to post the results of our sale. My computer has been down.

Anyway, the yard sale was a huge success! As you can see we had a lot of stuff to sell. By the end of the day we still had quite a bit left over, but had sold quite a bit as well.

Between sales and donations left with us that day we made over $1,000.00!!! That is awesome! It was truly amazing to witness the kindness of people, both friends and strangers. A woman who has never met Tami or her family told me that she just happened to read Tami's flyer at the down town Curves. She has checked the blog daily since then and is praying for Tami's recovery. She donated a case of tote bags to our yard sale and left us with a check to deposit into Tami's account. This is just one of the many amazing people that are thinking of and praying for Tami everyday.

Another gentleman just stopped by to check out the sale when he stopped to read Tami's flyer that we had posted. He belongs to a motorcycle club that is committed to helping out people in need. He asked to take a copy of the flyer so that he could see about getting some additional help for Tami and her family from his motorcycle club.

The entire day was very uplifting for me. It touched my heart to see all of these people genuinely concerned for our Tami and willing to help her out by making a purchase or a donation.

I must thank everyone who helped out at the sale that day. Devron, Sherry, Lisha, Grandma Ann, Riley, Patti, Chad, Andrea, the entire Goodfellow Family, and everyone who donated their stuff. This yard sale would not have been as successful without all of you. Thank you , thank you, thank you.

BODY WORLD TKTS DONATED

We have had four tickets to the incredible BODY WORLD 3 Exhibit in SLC donated for fundraising. ($22 value ea) Call Aunt Patty (435-229-3675) if you are interested. The website to get more information about the exhibit is http://theleonardo.org

This is the lead paragraph on the website: Gunther vonHagens' BODY WORLDS 3 & The Story of the Heart presents the form, function, complexity and beauty of the human body. Featuring a unique collection of more than 200 authentic human specimens including whole-body plastinates, organs and translucent body slices, this exhibit offers visitors profound insights in the human body, health and disease, and the intricate world of the cardiovascular system.

Thanks again for all the love, faith, generosity and support.

Wed. Oct. 1st

From Teresa...The CT scan taken at 5:00am today looked good. The doctors don't want to give her blood thinners for at least 6 weeks in case she needs any more procedures. So they are now putting in a filter to catch any blood clots from her legs that could travel toward her heart or lungs. It gets inserted from her groin area up a vein right below her heart area. Then she will get taken back up to rehab on the 12th floor to her old room. (I've been holding our reservation by staying there at night.)

She is sore today and her eyes are swollen shut. But she can hear and talk. Fr. Bob Bussen popped in again today to see how she was doing. He gave her another blessing. After he left she said "Get the priest", I asked why? She said "I need lots of blessings". I told her his blessings were strong and one was enough for today.

Anyway...More later..Teresa

SURGERY WENT WELL!!!

About 6:30 I was driving to work and I received a text from Teresa: "Tami is out of 3rd surgery. Went great! They put the skull piece back in. Yeah!" I pulled over to read it . . .shed a few tears and said a gratitude prayer. I spoke to her about 20 minutes ago (8:30pm) and she was heading back to see Tami. They let Teresa and Logan go in for a minute before she texted me the first time but then it was the two hour block for shift change and they had to leave. Two more YEAYS: She's not on a ventilator and she won't have to wear a helmet.
They will be watching her closely and hopefully they can make her comfortable while she heals from this surgery. The last few days have been very difficult for her. Thanks again for all the prayers and support.

Tues.Afternoon Sept 30th

From Teresa... Yesterday at noonish they removed the last IV line. That left only the feeding tube. Right now (2:20pm) they are upstairs putting in another central IV line in preparation for the next surgery scheduled for about 4:00pm today. The good news is; if there is no infection in the brain they plan to put back in the piece of scull they took out on Sept. 2nd. Then she won't need another operation to replace that, and she won't have to wear the helmet up in rehab or anywhere else. So keep us in your prayers again and still. More later.. Teresa

TAMI BACK IN ICU

I reluctantly drove back to St. George yesterday. It was SO hard to leave and I wouldn’t have except I thought the things that needed attending to here were critical as well.

I talked to Teresa about 3:20 and she said they were moving Tami back to ICU so they could watch her more closely. Her pain was still excruciating and they were concerned about her condition.
I talked to Teresa a few moments ago and she said they have given her plasma to offset the blood thinners and are considering surgery to relieve the bleeding and swelling. She only talked for a moment and this is all the information I have. She is a much better reporter than I am, but this lets you know we are concerned.

Please know how deeply and sincerely we appreciate your prayers, love, and support. When I arrived home yesterday, I wept as I opened my mail and felt your generosity and read your sweet notes. YOU ARE WONDERFUL!

Be patient . . . we will try to keep this updated.

Sunday night, Sept 28th

From Teresa... We took a day of rest. No work. She got pain medication every three hours. She slept through the first 2 1/2 hours then would wake in pain again and Grandma Ann and I would try to distract or relax her that last 1/2 hour until she could have more meds. By 9:00 pm she said the headaches were less than this morning. So I hope the rest did her good. Her vitals were good throughout the day. Brother Logan, and friend Tawnya were in tonight. She told Tawnya thanks for doing the yard sale. Logan shared his healing energy with her. More later... Teresa

Sunday, September 28, 2008
Hello everyone! It’s “Aunt Riley”! (I’m really Uncle Riley) “Aunt Riley is what Lily and Ella call me.
I had the opportunity to go see Tami this weekend.
When I first walked in the room she looked at me and said “hi Aunt Riley” just like her girls do to me. I was with her and Teresa for a couple of hours and I had a good conversation with Tami. I was surprised at how well she could communicate! Tami is so smart! It was amazing to me that she could remember so many small details about her life, my life and our family. She asked me questions about my girl’s birthdays and she told me that she was mad that she had slept through hers. (joke) I definitely got a sense that she still has the wit and humor we love about our Tami.

Physically, she is tired and in a lot of pain. She has lost a lot of weight and her face and head are swollen. She still cannot move anything on the left side of her body but she can feel some things on that side, which is encouraging. We think she can see a little out of her left eye and hear a little out of her left ear. With all that is happened to her, she of course, is still beautiful!

I am hopeful and optimistic for Tami but she is in for a long recovery. I sincerely believe she has the fight in her to do it but it is going to take a considerable amount of time.
In the mean time, she has a loving husband and two beautiful girls without the help of their mommy. They need all the support they can get!
Tami’s best friend Tawnya is such a sweetheart! The garage sale she organized was great and it raised some crucial funds to help their little family on the road to recovery. I went to the garage sale for awhile and while I was there I heard several stories of people who did not even know Tami donating whatever they could to help out our little princess.
I am writing to the readers of this blog, the families and friends of Tami, Albert and those little girls, and every other person that can help in any way. Tell her you love her! Please keep giving! And never stop praying!
I love and thank you all!
Uncle Riley

Evening update Sept 27th

From Teresa... Good news ,bad news day. Tami was having pain in her head yesterday after wearing her helmet . We called the company that fit it to her. They sent a guy over to readjust it for her. But by then her head was so sore that she was hurting even with it off. She had booked a massage with the guy that gives them free to the patients for 9:30 pm. By the time for it she was too uncomfortable to enjoy or relax for it. The nurse gave her medicine for pain and to help her sleep. She said she felt hot and nausious. She slep until 12:45am, then woke up uncomfortable again. She got more meds. and fell back to sleep. By 6:30 am she was hurting again and hot and nausious. I asked the nurses to check her temperature and vitals. She wasn't running a fever.( she was actually a little cooler than normal). Her nurse checked with her doctor about adjusting the pain meds. So most of the therapy was done in her room today with the exception of her walking a few steps with help in the paralell bars. She managed to eat half a thing of yogurt and enjoyed every bite.

Yesterday she was taken off the heprin drip, and put on a different blood thiner. Yeah! one less IV line.

This afternoon her head was still hurting, so the doctor ordered a CT scan. There is some swelling which is being monitored. She is snoring now. I think rest is a main ingrediant in her healing process.

Thanks to all that contributed to help with the yard sale, both in donations, and labor. I know it was a lot of work! Also thanks to those that purchased stuff.

Please keep her in your prayers still. More later...Teresa

Yard Sale Tomorrow

The big yard sale has arrived! Tonight I have received three more truck loads of "stuff " for the sale and two more truck loads are arriving in the morning. It is going to be a big one! Thank you, thank you to all who have contributed.

Many people have asked for the exact coordinates of Chad St. in Midvale. The location of the yard sale is

7679 S Chad St. (765 E) in Midvale just past Hillcrest High School and just before the Fort Union Harmons.

There will be directional signs posted on 900 E and on 1000 E. Also, map quest is always helpful.

I hope to see you there.

Friday Sept. 26th

Teresa says... Last night was much better. Tami and I both got a good nights sleep. Her nurse Kasi is fantastic!(So patient and loving). We managed to give Tami a second shower, which she loved. Tami is working hard and relearning how to do every day things like getting dressed.

My parents and sister Dolores came out to SLC to bring a truckload of donations for the yard sale tomorrow. They called when they arrived and happened to be here between Tami's workouts. So they got to visit her and have lunch with me. It was nice. Grandma Ann came up yesterday and is here today. It gives me peace of mind to leave Tami for a little while and run errands or work out at Curves and know Tami's in good hands with her Grandma Ann for company.

The book Regina gave me, "My Stroke of Insight" is really good. I'm learning all kinds of useful things to help me deal with Tami and what she is going through. It's probably something every nurse or person helping any patient should read. Anyway...Thanks again Regina. More later ....Teresa

In Rehab Sept.25th

From Teresa... We made it up to rehab by 1:00pm. The doctors evaluated her. OT came by.Then they let us settle in. It was a restless night. (new environment) She agreed to some pain relief at 3 am, and slept a little better. I was able to stay in her room with her. I got up at 7am and took a shower. So far this morning she's seen the doctor, OT, PT, speech therapy, the theripist for depression, and had a chest x-ray. All before noon! Now she's resting before the afternoon stuff. Visiting hours are from 4pm to 8pm.(If she's up to it) .Anyway... More later...Teresa

Yard Sale This Weekend!!

This weekend is the big yard sale! We are really excited. There have been a lot of great items donated; clothing, furniture, and antiques. There is an ad being run in the Salt Lake Tribune, Deseret News, and on KSL. We are hoping for a big turn out.

Come and check it out
Saturday, September 27th.
8:00am-2:00pm
7679 S. Chad St. in Midvale

Thanks again to all who have donated their "stuff "
Hope to see you Saturday!

ICU Breakout Sept.24th

From Teresa ... Tami's "breakout" from ICU is planned for 11:00 am today. I have her bag of clothes for rehab ready and waiting. The old room is stripped of photos,cards, CD's, etc. She had 'breakfast" of yogurt, applesauce, muffin, orange juice, ice chips, and water. YUM! Now we're just waiting to learn the new game plan....More later ...Teresa

Tues. Sept 23rd

From Teresa.... It's been an eventful day so far. Tami was up in her wheel chair first thing this morning. Her head and neck muscles are getting stronger each day. They did the scope thing to check on her swallowing abilities. She did quite well. The speech therapist will be back in this afternoon to let her eat some more. Also PT and OT hopefully. The catheter was removed yesterday afternoon and so was the chest tube. Today they removed the arterial line in her right arm. Each thing out is one step closer to recovery. Yeah!!!!

I got a tour of rehab today and the lady in charge said tomorrow between 11:00am and 1:00 pm to move her up to the 12th floor hopefully. More later... Teresa.

Morning update Sept.22nd

From Teresa... Last night one of Tami's nurses popped in to see her "awake". Candice had a few days off and Tami was still "asleep" the last time she took care of her. Candice kept telling Tami, "I'll let you slug me when you wake up." She was THRILLED to see Tami with her eyes open and hear that she could talk. I loved Candice with Tami. She called her "sweetie" and "beautiful" and had the sun shining into the room. She stimulated her and encouraged her to "go for it'. I promised Candice when Tami walks out of here we will track her down to say goodbye.

This morning occupational therapy was in and put Tami in a chair, and wheeled her around. She liked getting out of her room. They wore her out, so she's resting now. Depending on bed space , we should be moved up to rehab Tues. or Wed. More later... Teresa

Sunday Sept.21st

Teresa says... Albert and Logan kept Tami company last night. Logan said that before he left , she wiggled her left toes for him. That's the first movement out of the left foot so far. Today she had both occupational therapy and physical therapy visits. She is doing better each time. I haven't seen the speech people yet today. Tami is speaking more clearly each day. Her sense of humor is still strong. It's hard for her to be patient with herself and give her body time to heal and catch up with her mind.

Albert let her girls see her. Ella was gentle and gave her a kiss. Lilli wasn't sure what to think about the way Tami looked. So she blew her mom a kiss, and told her she loved her. Tami told Lilli she could make her a Birthday cake with sprinkles on it. Lilli liked that idea. They headed back to St. George this afternoon.

The sweet nurse Jeanie was washing Tami's head today and trying to comb out the side that still has hair. I asked Tami if it was ok to let her cut it short to make it easier to deal with. She said yes. Jeanie carefully cut it short. Aunt Devron promised to fix it up as soon as possible. (That's what Devron does for a living.) Anyway...Tami's helmet fit better today and didn't pull as much on her chin.

The physical therapist helped ease the pain in her hip, and I think I actually saw her smile a bit and tease him . That gave my heart joy! She was sore and worn out after all that hard work so the nurse gave her some pain medicine and an ice pack for her neck. She was resting when I left at 6:30 pm.

Lilli and I went to Mass today and thanked God for her mommys recovery so far and asked him to continue watching over Tami and all those who love her . (Also to bless all grandma Teresa'a friends at Lowe's). I miss saying "goodmorning" to each one of you "sleep deprived" early morning friends. Hang in there, and hold down the fort until I can get back and help out again. Teresa

The strength of our girl!

This is Devron, and I just got back from the hospital and wanted to let you know a little about my afternoon with Tami.
When I headed up to the hospital earlier I said a prayer that I would take a peace with me that Tami would feel, that I would know what to say and when not to speak at all.
When I got there , she was alone and it was so nice just to sit there in the silence with her. She looked at me lovingly and I felt the peace the I had prayed for. After a few minutes she said, "You look beautiful!" Even though I questioned her, I knew that she meant it. We continued to share a few words at a time and it was so nice just to sit with her. She even rubbed my hand back, as if trying to comfort me. I left after a little while and then returned and when I got back into her room the physical therapist and the occupational therapist were in there and they sat Tami up so that she could try and work some of her tired muscles and so she could try and see out the window. The P.T. asked if there was a picture in the room of Tami and I showed him one. He asked how recent it was, and I told him, very. I then commented that she was a hottie, and she seemed to thoroughly enjoy that. Every time we would mention that was a hottie, she would get a big grin on her face. Before I left I even heard a chuckle out of her. I also got to see her sit up and not want to lay down, because, even though it was very uncomfortable, she knows that it is the way back to recovery. Thank you Doug the P.T. for lightening the mood and making my Tami chuckle.
Today gave me hope. Hope that even though this is an awful tragedy, Tami is stronger than even she knows. She will always want to try longer and harder and that is why she will come through this. The road may be long, but she will be determined to travel it.
I have always admired the strength of this amazing girl and she just continues to amaze me.
Love Devron
P.S. I forgot to tell that the occupational therapist kept trying to get her to pucker her lips and Tami wouldn't do it, so finally the O.T. asked her to stick her tongue out, and Tamisaid,"For Ice Cream." Tami was trying to bargain with her, it made me smile.

Morning report Sept. 20th

From the mom.... By yesterday afternoon Tami was getting pretty frustrated with me for not just "pushing" her home so she could get a shower, go to the bathroom on her own ,and have her "dignity". She wants to see her girls. They fitted a helmet to protect her head from injury, so when she asked me to help her stand up and I said her left leg wouldn't support her, she would fall and get hurt. She said "that's what the helmet's for". Albert arrived at the hospital about 11pm. Tami was really glad to see him, (me too). I left them alone so she could tell him how mean I was to her all day.

This morning the doctors noticed some infection in the stitches over her right ear. They have started her on some antibiotics. She had another "swallow test" and did pretty well. (almost good enough to get the bothersome feeding tube out). They will check her again this afternoon. The chest tube didn't come out yet, maybe today....Anyway...more later....Teresa.

Friday Sept.19th

Teresa says... I just met with the lady in charge of rehab on the 12th floor. Good news, we are looking at Tues. for hoping to move Tami up there for the next step in her progress. I can't wait!!! Early this morning the "little turkey",(Tami) managed to pull out her feeding tube again! So they left it out until after a "swallow test" could be done. Just to see if she could eat on her own. She's still not quite there yet, so they just had to put it in again. Bummer... Anyway they will keep testing her each day to see when she can eat on her own. The chest tube is supposed to come out this afternoon, and she's finished with the saline solution for now. Her neck still hurts from when she tore some ligaments in it when she fell with the stroke. Also her lower back and sciatic nerve were bothering her before the stroke. Those are hurting her now after two weeks plus on her back. She is really missing her favorite Dr. Eric Johnson (Chiropractor) that moved to Kentucky. But over all, each day is getting better.

GRATITUDE!!!! Tami talks!!! Thursday 9-18-08

Grandma Ann reporting: My hands are shaking - tears of gratitude in my eyes - heart full of gratitude!!! I know she's not 'out of the woods' but she's talking to us. It is difficult and painful for her to talk because her throat is so sore from the monster tube - and we have to listen very carefully. We have pictures of their family and the two girls on the light that pulls down close over her bed. She has looked at them and acknowledged them, but a little while ago she pulled it closer and turned the light ON. The light reflects through the pictures and I think she can see them better. I WILL SHARE A FEW QUOTES: I told her how wonderful Albert has been. . .she said, "He's a good Dad!" She said, "I want food. No more fiber. Diarrhea." We got that message (but they can't give her food until her swallow ability has been confirmed). She said, "I want my girls." We explained that when she was moved to a different room, they could come see her. I told her she was a fabulous Mommy. She said, "I've had good examples." I am anxious to hear what the doctor has to say, but for now we are wrapped in the moment of the joy.

One more thing. . .I said that Devron was anxious to get up here to see her. She said, "Not Marc. He would be sad." We told her he was sad. . but that this morning he was HAPPY because she was doing better. Note to Marc: I will print the notes you have posted and share them with her. When she says she's ready. . .we will get you here. Hang in there Grandpa Dude!

The needs are still there (prayers, financial, medical, rehabilitation and who knows what else) and there may be setbacks. . .but our Tami is doing her "Tami Thing" - being a fighter. NO WONDER WE ALL LOVE AND ADMIRE HER SO MUCH.

more good news, Sept.18th

Teresa says... When I got back in Tami's room last night after your last update, she had managed to work her ventilator tube almost completely out with her tongue! So the nurses took it out the rest of the way! They had an oxygen mask on her mouth and nose. Around midnight they switched that to the little hose that sits below your nose and blows oxygen up your nostrils. I think it will be MUCH more comfortable for her. It's definitely easier for me to see her that way. She made it through the night that way, and today the ventilator machine is totally OUT of her room! I LOVE IT! She tried to say something to me this morning, but her throat is so raw and sore that I couldn't understand her. Her voice will be real raspy for a while. I can't wait to speak with her again!!! Keep up your prayers please. Thanks...

Yard Sale Update

On Saturday, September 27th a few of Tami’s friends and family members will be having an end of the season yard sale. ALL of the proceeds from the yard sale will go to Tami and her family!

I would like to thank everyone who has donated items to the sale up to this point. It is going to be a great sale!

If you or anyone you know have items, big or small, to donate to our yard sale please email me at tawnv8@hotmail.com. I have been able to arrange drop off locations in St. George, Orem, Heber City, and West Jordan.

Albert is leaving St. George for SLC on Friday the 19th. He will be driving his pick up and is willing to haul whatever donations will fit in it. If you are living in the southern area and have items to donate please email me for Albert's contact information.

We will post more information as the date of the sale approaches.
Thanks again,
Tawnya Goodfellow

Wed. Sept.17th

From Teresa...Another good day! At 6:25pm Tami followed some commands. First she "tracked" the nurse with her eyes, then she squeezed the two fingers of her nurse when asked. She was also able to wiggle her toes on her right foot and pushed against her nurses hand with that foot. She wasn't able to repeat it with her left foot, but to respond to any commands made my day! Then, after we left for the nurse shift change ,I understand that she managed to pull out her feeding tube from her nose.(I imagine it felt uncomfortable). So they put a new one in the other nostril. Her hands are anchored further down now. The tests to measure her blood coagulation came back with good numbers. (at least the ones the doctors are shooting for) They will retest again tonight to see if they are holding. She spiked a fever early this morning but after a bath her temp. came down again. They "deflated" the ventilator tube a little to check for inflammation of the throat. so far so good, no sign of swelling. I guess that's it for now.( Happy Birthday Lisa Mackey, from Teresa and Tami!)

HALLELUJAH!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Terasa just called and couldn't hardly contain herself. She was in Tami's room just before 6:30 and the nurse had moved from one side of the bed to the other and she realized Tami was tracking her with her eyes. She acknowledged this to Teresa and then put her two fingers in Tami's hand and she asked her to squeeze her fingers and SHE DID IT!!!Then she went down to her right foot and told her to push on it and SHE DID IT!!! She wasn't able to do it with her left, but who cares. This is amazing ! Teresa says she feels like once Tami starts the road to recovery she is gonna do it fast (relatively speaking).
Tami is a miracle and she will keep on being one. Keep Praying!

Tuesday night Sept.16th

Teresa's report... Hi, I realize people are checking this several times a day and I'm sorry there aren't more updates. Lately the ICU waiting room that I use for your updates has been really busy, and the computer seems to be in use every time I would like to get on. So it's been late in the night when I can get on. Today was another good day. Tami responded to textures and when the doctor pinched one arm she moved a leg. He said that was a good sign because the signal was traveling from one side of her brain to the other. She lifted her right leg quite a bit today, pulling it toward her trunk. She moved both arms a lot too. The left leg is not moving yet. She kept her eyes open off and on all day. It looked like she was focusing, but I still haven't been able to get her to follow a "command". (Then again that's not all that unusual even when she's well) . They removed the IV line in her neck,(right side) where they found the clot yesterday. They put a new line in on the left side of her neck. She has been getting a shot of Heprin (a blood thinner) every day, but today they started it in an IV drip. Hopefully it will help break up the blood clots. The treatment for the lung infection was completed this evening. The lungs are clear now. YEAH!

My dear friends from Lowe's in Vernal sent their love, support and care packages out with LeeAnn today. It was overwhelmingly sweet. I work with some really great people. Thanks! Yesterday I met some great Salt Lake City Lowe's employees. Their kindness and generosity blew me away. They don't even know me yet. I always believed in the goodness of people but this situation with Tami has really brought out the best in everybody I've dealt with.

Then later this evening Tami's bosses at Massage Envy stopped by to see how she's doing and let me know how much they love and appreciate her. I was glad to share my hope that soon she might be on her way out of ICU and up to the rehab. floor. It's hard to be patient and let her go at her own pace. Anyway.... If she can hang in there, so can I.

Kudos to Teresa from Grandma Ann

I want to let you all know that when an entry reads. . "Teresa says," or "Mommy says" that is really Teresa typing the update. Early on she told us in no uncertain terms that she doesn't like to journal. The first couple of times someone else was blogging her words, but she has really stepped up to the plate to keep us informed. Devron shared her password with her and she was off and running. . .and she IS the best informed and understands all that is going on better than anybody. (It will still say Devron's name at the bottom. . .but don't be misled.)

As most of you know, Teresa and I 'go way back' - we are in a long term relationship (forever?). I have often expressed my admiration and love for her and this experience has taken that to a whole new level.

I am headed North within the next hour. . .I am encouraged by Teresa's reports and look forward to even more improvement. Thanks again to all for your prayers, donations, moral support, caregiving to the little girls, love and faith. I wish I could personally give each one a hug. . . .please. . .consider yourself HUGGED by Grandma Ann.

Mon. Sept. 15th

Teresa says... Tami managed to breathe on her own all last night and all of today. She still needs to be able to follow commands like "squeeze my hand", "make a fist", "cough", "open your eyes", etc. in order to have the ventilator removed. But she's on the right track. The blood clots are still in her upper arms and one more was found today in her neck. They are monitoring them and giving her a blood thinner. Tomorrow the occupational therapist will be working with her on some brain stem stuff. It will involve textures, smells, music, and my voice. Should be interesting.

Sunday night update Sept.14th

From Teresa... Well more good news, the "bolt" that measured the inter cranial pressure was removed this afternoon. I keep looking to the monitor for that number and it's not there! It's strange after 12 days of constant awareness of it. She is doing most of her breathing on her own now. The machine is dialed way down and just providing support. Her core temperature is just a bit high, but they aren't stressing over it too much. (just trying to find ways to help cool her down without turning the "cool gard" back on). We are asking her to squeeze our hands, and she moves her arm, but can't squeeze our hand yet. Hopefully soon. With all this good news, I'm worn out so goodnight.

Sun. Sept.14th

From the "mommies' mouth"...It has been 2 weeks since the stroke hit... "my how time flies"...NOT! It's been an interesting journey. The CT scan yesterday showed no new damage. It looked almost identical to Thursday's . But that's OK. The doctor said it was a "massive" stroke, and she will have a long hard road ahead. They, and we , hope her youth will work to her benefit in her ability to recover. Today the ventilator is being dialed down a little at a time to see if Tami can pick up the slack and help breathe on her own. The goal being to remove it completely. She is lifting her eyelids now and then. I don't know if she is able to focus or see us yet, but she is trying. One of the most "encouraging" things for me today was the occupational therapist in her room this morning. She was beginning to work with Tami with some "range of motion" stuff. To my mind that is a step toward "rehabilitation "and a step away from "critical"! YEAH! I know there will still be some setbacks (that is the nature of this waiting game), but today I feel hopeful. Teresa

A Fundraiser for Tami

As you all know, Tami has been away from home and out of work for the past couple of weeks. There has been a fund set up for her and her family and I know there have been quite a few donations made already. Thank you to all who have donated.

On Saturday, September 27th a few of Tami’s friends and family members will be having an end of the season yard sale. ALL of the proceeds from the yard sale will go to Tami and her family!

We would like to make this sale as big as possible. The more we have to sell, the more we will make! If you or anyone you know have items, big or small, to donate to our yard sale please email me at tawnv8@hotmail.com to make drop off arrangements.

The sale will be held in SLC. Do NOT be discouraged from helping out if you are living out of the area. Contact me and we will see what we can work out.

We will post more info as it gets a little closer.

THANK YOU!!!
Tawnya Goodfellow

Sat. Sept. 13th

Good morning from Teresa....Tami is scheduled for another CT scan today. The doctors are trying new things to evaluate her abilities. The "cool gard" machine is connected to monitor her core temperature, but it's not turned on. We are hoping she can maintain her own temperature. Yesterday she was coughing on her own. That was a good thing. If she can show that she can "protect her airway" they can remove the breathing tube soon. I'm sure she would feel better without that in the way. (not to mention she could TALK to me) I'm really looking forward to that day! They have taken her off the drugs that paralyze, and are using the pain killing ones.
We are hoping to see more "wake up responses". The doctor allowed me to hold the cell phone up to Tami's ear and let Albert and her girls wish her Happy Birthday. Her eyelids fluttered. I think she heard them. I had it on speaker so I could help talk to Lilli for her mom. Hopefully soon Tami can speak for herself.

My dear friends from Lowe's in Vernal are paying for my hotel room when I CHOOSE to use one. (Since I am over 30 I feel I can make that decision for myself.) Lately with Tami so critical I did not want to be any further away than the parking lot. If I needed to check on her at 3 am. I could. As she gets a little better, I will be able to sleep a little further away from her. So thanks for all your love and concern but please allow me to be an adult. I am doing well, as long as Tami hangs in there, I'm just fine. Please keep her in your prayers.

As soon as the results of the new CT scan are in or new information occurs I'll update.

Grandma Ann Reports - FRI - 9/12

Teresa is much better at sharing the technical details. I am going back to St. George later this afternoon and I wanted to leave a note. As you all know it is an emotional roller coaster. I saw her raise her eyelids a bit yesterday in response to a prompt from the nurse. . .HOPE! Then they take out a tube yesterday and have to put it in again today. . . .concern. But, last night the doctor spent some time talking to Teresa and discussing the scan with her (she 'gets' that stuff. . .I don't). I asked her for a quote. . .among other things he said, "no increased damage and some improvement (from the scan 3 days ago)." We'll call that 'hope.'



I want to say again how grateful and humbled I am by the kindness, love and caring of so many family and friends (and friends of friends). I plan to try and modify the blog when I get home (and have the comfort of my own computer) so that we will have info more visible at the beginning about how to make monetary contributions. I will try and keep it simple. I have handed out Kristina's flyers since I have been here. Teresa posted one at the Curves near here.



Albert continues to be a valiant and strong 'Papa.' His family continues in their support. All of you are inspiring. I'm going to go and whisper my love and yours to Tami before I leave. Even though this is a difficult time and hearts are heavy. . .don't forget to watch for those 'gratitude' moments. There are still many instances of joy in most of our days if we pay attention. Love and thanks to all!

HAPPY 27TH BIRTHDAY TAMI

From your mommy... If you wanted me here for your birthday, you could have just asked! No need for dramatic measures. I love You , and can't wait to have you walking and talking and laughing again. You are my "angel with an attitude!" Keep fighting babe.

Thursday's update

Teresa says... Well some days are more optimstic than others. Yesterday evening she developed some blood clots in both of her upper arms. They are monitoring them and she is on a drug to help thin the blood. (heperin) The left lung is responding to the antibiotics for the infection. The plan for today is to remove the chest tube about 2:00 pm. It was removing fluid on the outside of her left lung.(it goes in near her rib cage.) Not to be confused with the ventilator down her throat. Anyway.... One less thing YEAH! WE were happy to be off the manitol yesterday but today it's helpful again, so they are alternating it with the 23% saline to keep the ICP #'s down.

Yesterday was draining for me because first I cheated myself on sleep. I figured I'd just take a nap later in the day but it didn't happen. Ann and I made some progress with an apt. to get the ball rolling on Social Security Disability for Tami. The meeting took 2 hours. I f it weren't so important for Tami, I would have walked out. Thank God Ann is good at that stuff and could help me deal with it. Anyway.. I realized I was just beat and needed a good hot shower and a full nights rest. So those of you who worry about me will be happy to know I checked into a motel for the night. I feel recharged today.

I think we will have up days and down days, we just need to be patient and let Tami and the staff do their things. Keep Praying.

This is my second attempt to put something into Tammy's Blog. my first attempt was a good one but when I went to press submit something happened and all was lost. Gotta love technology! (Its actually the user that you have to wonder about).
I was having some thoughts about our Little Angel Tammy. I know that there have been many of us that would gladly switch places with her. To try to suffer the pain or shoulder the burden. We might wonder why her and why now. But It is the Angel among us that has that capability to over come. Angels while beautiful and seemingly delicate and demure are are truly very strong and powerful and possess great will and faith. If anyone can Tammy can!
Albert, Thank you for being so thoughtful and sweet to Tammy and for being such a tremendous father to your beautiful daughters. I have heard so many good things from both family and from co-workers about how you are dealing with the challenges of Tammy being ill. I am very proud of you and greatful to have you as part of our family! Tracy and I and the boys will have all of you in our hearts and in our prayers.
1-4-3
Rick

Early morning edition Sept 10th

From the Mommie again... I came in @ 5;45am to see Tami before the 6:30 to 8:30am nurse "changing of the guards". She's still looking better. Nick had her all fresh and clean for the day. They "brush" her teeth with a sponge like thing attached to a suction tube. There is some kind of medicine on the sponge to prevent pneumonia from the germs in the mouth and teeth area. The doctors and nurses have pretty much weened her off of the mannitol (I'm not sure if it's spelled that way but that's what it sounds like to me). They are only using the 23% saline solution to help lower her ICP (inter cranial pressure). The nice thing about that is it has less side effects. They are only giving it to her as needed. Tami will turn 27 on Friday Sept. 12th. I figure when she "wakes up" and knows who we are we'll have a Birthday party of sorts, In the meantime we'll just keep on "keeping on". Now I'm going to go take a nap

midnight edition Sept 9th

Teresa says... I just spent the last hour in Tami's room. She's looking a little better all the time. Her ICP #s are maintaining. Yeah! Her arms and hands are still so full of fluid that they look like a Halloween wax arm, but her wrist has a little bit of definition that wasn't there the last few days. Her nurses are phenomenal! They are so patient with us, answering our many questions and explaining everything to us. Bless them ALL! They work 12 hour shifts. My nurse Ann called in today and asked for Tami on tomorrow's shift. She's been doing this kind of work since 1994. Dear Janet (today's day nurse) has been at this for 27 years! ( As long as Tami's been alive!) These special"Angels" are truly doing Gods work. Nick (tonight's nurse) explained that the machine that keeps Tami's internal temperature down is a brand new device. It's called a "CoolGard". Before this was available they would have to spray down the patient, have fans blowing across them and massage the cold into their body. I guess it was uncomfortable and a lot of work! Anyway... neat stuff... Tami's lungs seem to be working a little easier, at least the top parts. The bottom section of the left one is still somewhat congested but overall the respiratory therapists are pleased with Tami's progress, and if they are pleased so am I! That's it for now, again thanks for the prayers and everything else.

Grandma Ann Reports. . 6 PM - Tues 9-9

Not much to report but I know you are all concerned so I wanted to update as best I could. She went 7 hrs today between medication for the cranial pressure (1:30pm). Pressure went up again about 5pm - more meds. One positive thing: the nurse was able to remove one of the 'I.V. Thingys.' She called it that to amuse us. She no longer needs the blood pressure medication.
Teresa and I went to the SS office to start the process for some Social Security assistance. We brought paperwork back that the Doctor had to fill out. He did. We have a meeting again tomorrow at 11am. They had a cancellation or we would have had to wait until Sept. 26th.

Several people have written comments offering a place for Teresa to stay. Thank you for your generous offers. She has had offers since the first day from family and friends that are nearby. Any of you that know Teresa. . .know that she will do - what she will do. Gotta' love her! And we do! While I am here I will try to keep this updated. . .THANKS again for all the prayers, support and love for our precious Tami.

Tues-Sept 9 - Teresa Reports. . . .

Good news this morning. Tami's ICP #'s stayed good all night. They only had to give meds at 7am. It's now noon and she hasn't needed additional. She's hanging in there.

Yesterday they made boots for her feet with lambskin insoles to keep her ankles from going floppy. They also put her on an air mattress pad to prevent bed sores. They were giving her liquid nourishment (like Boost or Ensure). What goes IN is coming OUT and functioning properly. Also, her fluid output is greater than fluid input - which is a good thing because they are trying to flush out excess meds and liquid. Her face is looking less swollen.

We were also allowed to bring in a CD player and play some soothing music. We don't know if it helped Tami but it made the environment nicer.

One thing they are monitoring this morning is - the left lung seems to be functioning less faborably than the right lung. They took an X-ray. . .it wasn't as bad as they thought - they are still deciding whether to put a scope down and look around. They can also suction out congestion if they need to.

When I spoke to her doctor he seemed 'almost' hopeful. . .and that made me feel good.

My sister Becky came out Sunday afternoon and has been hanging out with me. If Tami wasn't so ill. . .it would have been a good slumber party. . . .I enjoyed the visit.

Grandma Ann is here for a few days and we are brainstorming on household mgmnt issues.

Keep praying. . .thanks for all the love and support.

For those of you who would like to help raise funds for Tami and her family, please email me and I will send you a file that you can print out, mail, forward, or post it as a bulletin. It is a Flier that I compiled from all the blogs on this website and put a few pictures of tami and her family on. I am hoping that we can all share this story with any of our extended friends and family members to help raise funds and get a network of prayers going for Tami.... May many more hearts and prayers go out for Tami, Albert, Lilly and Ella.God bless you all,Cousin Kristina Casados KristinaC@sunpacificglazing.com
September 8, 2008 10:08 AM

Monday Morning

Teresa just called...
Her numbers have been going up again. They have been trying to ween her slowly back off some of the medication, but the numbers just kept climbing. They finally administered her a bigger dose, but it started to affect her blood pressure, so they had to readjust some other medication. They have things pretty leveled out, but they could be better. It hasn't even been 24 hours since surgery, so hopefully as a little more time passes, all things will even out.
Even though they removed some of the brain, it was another surgery, so there is probably some swelling coming from that.
It is so amazing to feel the love and support from all of you. Keep it coming!!!

3:20 on Sunday afternoon

Tami is out of surgery. They did what they went in to do. They removed a baseball size piece of her right frontal lobe, that was dead and damaged, which helped relieve the pressure considerably. It went from 35 to 4. The doctor said that , that is a pretty silent part of your brain. He also said that for now things are where they need to be with her brain, and hopefully the pressure will stay down. We are waiting to be able to see her. As always keep praying, and we will let you know as we do.