a medical update.

HI THERE ALL. I HAVE HAD A FEW NEW HEALTH THINGS. I USUALLY ENJOY WRITING ABOUT JUST MY DAILY LIVING, BUT SOME HEALTH THINGS ARE NEW, SO I'LL UPDATE THOSE OF YOU THAT DON'T SEE ME REGULARLY.
LAST MONTH MY NEUROLOGISTS SCHEDULED AN OVERNIGHT SLEEP STUDY, TO BE DONE ON ME, TO TRY AND FIND OUT WHY I AM CONSTANTLY FATIGUED AND HAVE DAILY HEADACHES.
I PERSONALLY WANT TO KNOW ALSO. I JUST REALLY HATE HAVING TESTS DONE.
IT WAS FOR JULY 8TH, AND ALBERT WORKS OUT OF TOWN, SO I ARRANGED FOR PART OF MY "ANGEL CREW" TO HELP ME. AUNT MONICA DROVE ME TO THE HOSPITAL AND THEN KEPT THE GIRLS OVERNIGHT.
ONCE I GOT THERE, THEY TOOK ME TO A FAKE BEDROOM AND PROCEEDED TO PASTE ABOUT 50 WIRES, AND ELECTRODES TO MY HEAD. NOW I HAVE HAD THIS DONE BEFORE, BUT NEVER HAD THEM ON FOR MORE THAN AN HOUR OR SO.
ONCE MY HEAD WAS RIGGED UP, THEY PUT SOME MORE ON MY CHEST AND SHOULDERS, FOR HEART MONITORING, THEN ATTACHED IT ALL TO A HARNESS AROUND MY CHEST AND WAIST. ONCE THAT WAS DONE, THEY PUT SOME ON MY LEFT LEG AS WELL, STRINGING IT ALL TOGETHER IN A CONTRAPTION THAT WAS LITERALLY HEAD TO TOE. BUT IT DOESN'T STOP THERE, MY FACE LOOKED BARE, SO THEN I GOT 8 THINGS TAPED AND PASTED THERE, ONLY TO BE TOLD "JUST RELAX AND SLEEP NORMAL", SERIOUSLY THEY HAVE GOT TO BE KIDDING!!!
SO I WATCHED A LITTLE TV, HOPING TO GET AS TIRED AS I COULD GET, AND POSSIBLY SLEEP A BIT. THERE IS A SPEAKER ABOVE MY HEAD SO THE NURSE CAN HEAR ME, IF I NEED HELP, OR BY CHANCE, HANG MYSELF IN THIS CONTRAPTION!!! I AM ALSO BEING RECORDED FROM THE CEILING , WEIRD!! " NOW SLEEP MY PRETTY".
AMAZINGLY, I DO FALL ASLEEP, AND WAKE TO PITCH BLACKNESS, NO CLOCK OR IDEA OF WHAT TO DO NEXT, SO I SPEAK TO THE WALL, AND ASK IF I MAY USE THE RESTROOM. THE NURSE COMES IN AND HANDS ME THE POWER BOX TO MY CORDS, WHICH I HAVE TO CARRY WITH ME TO THE RESTROOM. I JUST CAN'T WAIT TO GO HOME! I GO BACK IN MY ROOM THINKING IT'S ALMOST OVER, THEN TO MY SURPRISE, SHE SAYS," OK GOODNIGHT". I WAS SERIOUSLY DISAPPOINTED. I WAS THINKING NOW WAIT, I SLEPT, I'M AWAKE, LET ME OUT! BUT I DID AS TOLD, AND GOT BACK IN BED ONLY TO LIE THERE, TRYING TO WISH MY WAY HOME. AFTER AN HOUR OF THAT, I SPOKE AT THE WALL AGAIN, AND ASKED IF I COULD GET UP NOW? FEELING LIKE A TODDLER IN TROUBLE WAITING FOR MOM, THE NURSE SPOKE BACK THROUGH THE WALL, AND SAID SHE WAS ON HER WAY. AFTER QUITE THE PROCEDURE OF UNHOOKING ME, I WAS ALLOWED TO GO SHOWER AND GET DRESSED. MY HAIR IS FULL OF GLUE AND PASTE. ONCE I WAS DONE, I CALLED OH SWEETEST MONICA AND SHE CAME TO RESCUE ME FROM THE TOWER.
IT WAS GOING TO TAKE 3 WEEKS TO GET THE RESULTS. WHAT AN EXPERIENCE!

WELL, I JUST GOT THE RESULTS A FEW DAYS AGO, AND I SLEEP NORMAL, EVEN IN A WEIRD CONTRAPTION, SO NO EASY ANSWERS.
BUT THE DOCTOR DID SAY THERE WAS ONE DISCOVERY,
WHEN I WAS AWAKE, AND THE LIGHTS WERE ON, MY BRAIN WAS HAVING MULTIPLE MILD SEIZURES, BUT THEY STOPPED AS SOON AS LIGHTS WENT OFF. BUT IN THE MORNING, AS SOON AS THE LIGHTS WENT ON, THE SEIZURES CONTINUED. NOW I ALSO THOUGHT A SEIZURE WAS SOMETHING YOU KNEW WAS HAPPENING, BUT I WAS WRONG. SO ANYWAY, THE DOCTOR SAID IT WAS BEING CAUSED BY LIGHT THAT THE SEIZURES WERE HAPPENING, AND THAT WE MUST NOT HAVE MY MEDICINE DOSAGE RIGHT. SO WE NEED TO CORRECT THAT, AND THAT I SHOULD BE WEARING SUN GLASSES, WHICH I DO OUTSIDE, BUT DIDN'T KNOW INDOORS TOO. SO HE SUGGESTS I TRY DIFFERENT TINTS AND SEE IF IT HELPS. BECAUSE I'M EXHAUSTED ALL THE TIME, FROM MY BRAIN HAVING THESE ISSUES, WHICH COULD ALSO PLAY A FACTOR IN THE ENDLESS HEADACHES.
FASCINATING INFO, BUT I KNEW IT MADE PERFECT SENSE, SINCE WHENEVER I AM IN BRIGHT LIGHT I WOULD GET INSTANTLY IRRITATED, AND/OR MEAN, AND I NATURALLY TRY TO STAY IN THE DARKER PART OF MY HOUSE.
SO THE GOOD NEWS IS: LIKE MOST OF ME, AFTER SOME TWEAKING AROUND I CAN BE MAINTAINED.

MY NEXT NEWS ISN'T AS LONG, AND MUCH MORE FUN FOR ME.
THIS WEEK AT MY BIO-FEEDBACK APPOINTMENT, MY TINIEST OF LITTLE BICEP MUSCLE WAS ACTUALLY GETTING IN THE WAY OF THE ELECTRODE. THIS WAS FABULOUS NEWS TO ME, SINCE IT IS MY FIRST DEFINABLE MUSCLE IN MY LEFT ARM! HAPPY DAY! I'M ONE STEP FARTHER IN THAT ARM, OF COARSE I WANT IT ALL! BECAUSE I'M GREEDY. BUT TODAY I WENT BACK TO THE START OF THIS BLOG, AND I CAN REALLY SEE MY PROGRESS. I GET LOST IN MY "NOW", AND FORGET THE PROGRESS OF THE PAST. I GO BACK, AND READ THE OLD STUFF, WHICH ALWAYS MAKES ME CRY, IT DOESN'T SEEM POSSIBLE, AND AT THE SAME MOMENT, FAR TO REAL TO ABSORB.
GOD BLESS YOU ALL;
HE SURE BLESSED ME,
LOVE TAMI.