I AM PART OF SOCIETY NOW YEEHAW FOR ME.!WE HAD EXPLAIN TO EL WHY SHE DOES' MUCH FUN TODAY LILLI HAD A COSTUME PARADE AT HER PRESCHOOL SO WE WENT AND TOOK ELLA IN HER COSTUME AS WELL EL WAS SO BLASTED HAPPY TO GO TO BIG SISTERS SCHOOL THEY HAD CUPCAKES AND ROOT BEER IT'S HARD ENOUGH TO EL WHY SHE DOESN'T GET TO GO EVERY DAY NOW SHE THINKS IT'S ALWAYS A PARTY THEY WERE SO PRETTY CINDERELLA FOR LIL SLEEPING BEAUTY FOR ELLA OF COARSE I THINK MY GIRLS ARE THE CUTEST KIDS EVER BUT THEY REALLY ARE
WE ARE GOING TO A FRIENDS CHURCH FRIDAY NIGHT FOR TRUNK OR TREAT. IT'S EASIER AND SAFER THAN DOOR TO DOOR. I'M ALREADY CRINGING AT THE AMOUNT OF SUGAR THEY ARE GOING TO EAT. I WILL BE HIDING AS MUCH OF IT AS POSSIBLE FOR EASTER MAYBE THATS FAR ENOUGH AWAY THEY'LL FORGET BY THEN.
NOW I WILL UPDATE THIS MORE OFTEN FOR SURE AND TERESA WON'T HAVE TO FILL IN FOR ME.
Thursday, October 29, 2009
Monday, October 26, 2009
Monday Oct. 26,2009
From Teresa... Hi, it's been awhile since I've added anything to this blog. Tami seems to be hanging in there these days. She was invited to join Aunt Monica and family on a weekend trip to San Diego. They stayed with Aunt Becky's family and had a great visit. They went to the beach, zoo, and other local sights. The long drive was hard on Tami's bottom, but it's that way for any of us.
Tami's neurologist changed her anti-seizure medicine from the keppra to something else, which seems to have less severe side effects for her. The new one makes her sleepy and affects her complexion but less mood swings and other frustrations.
Last week at her bio-feedback therapy Tami asked Steve to work on her left leg and knee, instead of her arm. She got some major improvement by the end of the session! Only she fatigued that leg so much during the appointment, that she had a hard time getting on and off the elevator to leave! The good news is.... everything her brain learns during the sessions, it remembers, no matter how long between therapies. I think she wants to do more leg stuff this week again. (The knee and ankle don't have the "lift" movement very well. As a result she swings that leg out and around. ) Then she'll go back and work more on the arm and hand.
Lilli and Ella both picked up a ''bug" of some kind this last weekend. They are both feeling better today. Tami's happy to be done with cleaning up the puke and diarrhea for now. She is also trying to be sure to get her rest in , so she stays healthy too.
Lilli is going to pre-school three days a week now. The sweet teacher picks her up and drops her off at her house those days. Lilli absolutely LOVES it, and Ella gets some quality alone time with her mommy. It's great all around.
I'm hoping to run to St. George on my days off next week. I really miss the little turkeys. More later....Teresa
Tami's neurologist changed her anti-seizure medicine from the keppra to something else, which seems to have less severe side effects for her. The new one makes her sleepy and affects her complexion but less mood swings and other frustrations.
Last week at her bio-feedback therapy Tami asked Steve to work on her left leg and knee, instead of her arm. She got some major improvement by the end of the session! Only she fatigued that leg so much during the appointment, that she had a hard time getting on and off the elevator to leave! The good news is.... everything her brain learns during the sessions, it remembers, no matter how long between therapies. I think she wants to do more leg stuff this week again. (The knee and ankle don't have the "lift" movement very well. As a result she swings that leg out and around. ) Then she'll go back and work more on the arm and hand.
Lilli and Ella both picked up a ''bug" of some kind this last weekend. They are both feeling better today. Tami's happy to be done with cleaning up the puke and diarrhea for now. She is also trying to be sure to get her rest in , so she stays healthy too.
Lilli is going to pre-school three days a week now. The sweet teacher picks her up and drops her off at her house those days. Lilli absolutely LOVES it, and Ella gets some quality alone time with her mommy. It's great all around.
I'm hoping to run to St. George on my days off next week. I really miss the little turkeys. More later....Teresa
Sunday, October 4, 2009
WELL HI TO EVERYONE WE ARE STILL MOVING FORWARD. LAST WEEKEND I JOINED ALBERT &THE GIRLS FOR A LITTLE CAMPING IN PINE VALLEY I HAD HIGH HOPES TO MAKE IT 3 DAYS BUT AFTER THE FIRST COLD UNCOMFORTABLE NIGHT OF VERY LITTLE SLEEP I WAS BEGGING TO HEAD HOME SO ALBERT GAVE IN AND DROVE US HOME AFTER OUR DINNER ON SATURDAY EVENING THE GIRLS ARE VERY USED TO ALL THE FUN OF THE MOUNTAINS & BEING WITH THEIR WONDERFUL DAD. WE SAW DEER CATERPILLAR'S AND THEY FOUND A SNAKE WITH DAD SO WE ALL HAD FUN AND WERE TIRED AND DIRTY WHEN WE CAME HOME IT WAS OUR FIRST TRIP IN DADS NEW CAMPER ALBERT COOKS WONDERFUL FOOD WHILE CAMPING GRANDMA TONI CAME OUT TO JOIN US FOR DINNER. THEY HAVE SWITCHED ONE OF MY MEDS AND IT HAS MADE A GREAT DIFFERENCE IN MY MOOD I'M HAPPIER AND ENJOY GOING OUT MORE PLUS IT DOESN'T HAVE THE NASTY SIDE EFFECTS OF THE OLD ONE WE HAVE BEEN HAVING A BUNCH OF FUN AS A FAMILY WE MADE A TRIP TO THE FUN CENTER TO LET ME TRY OUT MY DRIVING SKILLS IN THE GO-CARTS IT WAS SO MUCH FUN LILLI RODE WITH ME AND DAD & ELLA WATCHED US IT WAS SO MUCH FUN I CAN'T WAIT TO DO THAT AGAINIT WAS THE BEST REHAB HOMEWORK SO FAR IT WILL BE AWHILE BEFORE I BRAVE A REAL CAR AND ROAD BUT IT'S JUST UP FROM HERE. I'M CONTINUING WITH MY BIO FEED BACK THERAPY ON MY ARM AND EVERY WEEK IS STRONGER THAN THE LAST I STILL DON'T HAVE USE OF THE FINGERS AND PRAISE GOD WHEN I DO I WILL HAVE THE WORLD IN MY HAND LITERALLY A YEAR HAS PASSED AND I'M FINALLY ADJUSTED TO MY NEW WAY OF LIFE BUT NOT GOING TO SETTLE I WILL KEEP GOING AS HARD AS I CAN. I TOOK THE GIRLS FOR A WALK TO THE PARK LAST WEEK BY MYSELF IT WAS QUITE THE STRUGGLE BUT THE GIRLS HAD FUN AND WE MADE IT WE HAD GREAT NAPS WHEN WE GOT HOME LILLI HELD ELLAS HAND AND I WALKED BEHIND THEM WITH OUR SNACKS MY BEAUTIFUL GIRLS ARE TRULY WHAT KEEPS ME GOING. ALBERT ALSO TOOK ME TO GET MY HAIR DONE WHICH I LOVED SHE STRAIGHTENED OUT MY CURLS AND I ACTUALLY FELT GOOD. ALBERT WAS SO HAPPY HE SAID I LOOKED LIKE THE OLD ME LILLI WAS UPSET BECAUSE SHE WANTS MOM TO HAVE CURLS LIKE HER I PROMISED HER THAT AS SOON AS MOM GOT IT WET THE CURLS WOULD BE RIGHT BACK AND SURE ENOUGH THEY WERE AND SHE WAS CONTENT AGAIN THE SWEET GIRL THAT DID MY HAIR SAID I COULD STOP IN ANY TIME AND SHE WOULD STYLE IT FOR ME IF I WANTED. I TOOK HER UP ON IT SO I COULD GO TO A PLAY AT TUCAHN THEATER AND FEEL CUTE I LOVE IT I ACTUALLY HAVE HAIR NOW WHICH IS SO NICE I DIDN'T PULL OFF THE BUZZED HEAD LOOK VERY WELL. SO LIFE GOES ON AND I GET STRONGER EVERY DAY I FEEL OVERWHELMING GRATITUDE TO ALL THAT HAVE HELPED ME THROUGH THIS PAST YEAR AND THERE ARE A LOT OF THEM
GOD BLESS AND LOVE TO YOU ALL! I'M MAKING IT A GOAL TO GET A COMPUTER SOON AND JOIN THE REST OF THE WORLD WITH E-MAIL AND SUCH. THAT WILL BE SO NEAT.
GOD BLESS AND LOVE TO YOU ALL! I'M MAKING IT A GOAL TO GET A COMPUTER SOON AND JOIN THE REST OF THE WORLD WITH E-MAIL AND SUCH. THAT WILL BE SO NEAT.
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